Addie's uncovered medical expenses

My name is Michelle Moore, I'm the NANA of Addison (Addie) Grace Humphrey. Addie, as we call her is our little miracle girl. We are asking for some help to pay for Addie's medical expenses that are not covered by insurance. Addie is now four years old, born with hydrocephalus. At age one, she started having seizures and has been diagnosed with epilepsy and has global development delays. Addie has been having more frequent seizures that are very hard to stop and requires hospitalization. She has tried multiple different emergency medicines to help stop or reduce her seizures. None have worked so far. She has been med flighted/transferred to Children's hospitals multiple times. This required her parents to be off work and be by her side from days to weeks at a time every few months as they have been getting more frequent. A few months ago she had to be intubated just to get the seizures to stop. She has been having multiple appointments with her own team of specialist and doctors. Insurance will not cover all the expenses. Addie recently had a seizure while they were traveling this summer and had to go to two different hospitals. Due to it happening out of state, it is not covered by insurance. This money will go directly toward her medical bills, medical equipment, supplies, and therapies that she will need.