Aiden’s “Superhero” DMO Suit Part 3
Donation protected
Hi everyone,
Aiden has been thriving in many ways since his ailments have gotten the best of him on more than one occasion. I am thankful he does not have many overnight stays these days.
Lately we feel like we are back to square one with Aiden, we have so many unknown things going on with him. Each time we test and exclude what Aiden does not have we still never fully figure out what Aiden does have or even how to treat it.
We are currently waiting for upcoming tests (some awake and some asleep), some repeat test and a second opinion in Philly. All great and exciting things for Aiden once we narrow down his issues and begin to treat them.
For now, all we know is Aiden does very well with the DMO suit/brace. It is definitely something he dislikes but it helps him eat, use the bathroom and not feel so much pressure/pain in his spine (Aiden has Kyphosis which is an outward curvature of his spine). Aiden hasn’t needed a new one for two (2) years and the one he does have doesn’t fit. Sadly, this means we need to order a new one and unfortunately it is not covered under insurance. I can not order his new suit/brace until it is paid in full.
If you would like to help in the purchase of his new DMO suit/brace, please donate here. Any help is greatly and appreciate. If we reach our goal, the additional funds will be used for expensive co-pay and his trip to Philly to CHOP.
Thanks everyone <3
Aiden has been thriving in many ways since his ailments have gotten the best of him on more than one occasion. I am thankful he does not have many overnight stays these days.
Lately we feel like we are back to square one with Aiden, we have so many unknown things going on with him. Each time we test and exclude what Aiden does not have we still never fully figure out what Aiden does have or even how to treat it.
We are currently waiting for upcoming tests (some awake and some asleep), some repeat test and a second opinion in Philly. All great and exciting things for Aiden once we narrow down his issues and begin to treat them.
For now, all we know is Aiden does very well with the DMO suit/brace. It is definitely something he dislikes but it helps him eat, use the bathroom and not feel so much pressure/pain in his spine (Aiden has Kyphosis which is an outward curvature of his spine). Aiden hasn’t needed a new one for two (2) years and the one he does have doesn’t fit. Sadly, this means we need to order a new one and unfortunately it is not covered under insurance. I can not order his new suit/brace until it is paid in full.
If you would like to help in the purchase of his new DMO suit/brace, please donate here. Any help is greatly and appreciate. If we reach our goal, the additional funds will be used for expensive co-pay and his trip to Philly to CHOP.
Thanks everyone <3
Organizer
Michelle Sanchez
Organizer
Charlotte Hall, MD