Aiutare Andrea a sostenere la terapia a pagamento
Donation protected
Ciao, mi chiamo Andrea, sono un paziente in cura da 3 anni presso l'istituto Nazionale dei Tumori di Milano e sto cercando di raccogliere fondi per portare avanti una terapia a pagamento per un tumore raro, con metastasi a livello di ossa, fegato, polmoni e cervello e non responsivo ai trattamenti standard (chemioterapia, radioterapia, terapia anti-ormonale).
Il bravissimo team di oncologi che mi segue all'Istituto Nazionale dei tumori di Milano, mi ha proposto una terapia a pagamento con Trastuzumab deruxtecan che ammonta a quasi 13000 € ogni 3 settimane. AIFA non ha al momento ancora contrattato il costo del farmaco ma harifiutato la richiesta dell'istituto di coprire i costi della cura precedente (3800 € ogni3 settimane perché per i tumori rari come il mio non ci sono abbastanza dati, nonostante le caratteristiche del tumore siano molto simili al tumore al seno metastatico (positività per il recettore HER2+)
Sto chiedendo aiuto perchè non ho molte alternative e i fondi raccolti saranno totalmente utilizzati per sostenere i costi (molto/troppo) elevati della terapia, difficili da sostenere a medio/lungo termine (anche per chi ha uno stipendio dignitoso).
ENGLISH
Hi, my name is Andrea, I am a patient under treatment for rare salivary gland tumor, with metastases in the bones, liver, lungs and brain and unresponsive to standard treatments (chemotherapy, radiotherapy, anti-hormonal therapy). I am trying to raise funds to carry out an expensive therapy.
The great medical team following me at Istituto Nazionale dei tumori di Milano since 2 years ago, proposed a therapy with Trastuzumab deruxtecan , that is not covered by the National Health System for this type of cancer. The cost of the therapy amounts to € 13000 every 3 weeks (“. AIFA (the Italian FDA) refused the institute's request to cover the costs of the previous and cheaper treatment because there are not enough data for rare tumors like mine, despite the characteristics of the tumor are very similar to those of metastatic breast cancer (high expression of the HER2 receptors), for which the administration of deruxtecan gives good results.
I'm asking for help because I don't have many alternatives and the funds raised will be totally used to support the (very) high costs of the therapy, difficult to sustain in the medium/long term (even for persons earning a decent salary).
ENGLISH
Hi, my name is Andrea, I am a patient under treatment for rare salivary gland tumor, with metastases in the bones, liver, lungs and brain and unresponsive to standard treatments (chemotherapy, radiotherapy, anti-hormonal therapy). I am trying to raise funds to carry out an expensive therapy.
The great medical team following me at Istituto Nazionale dei tumori di Milano since 2 years ago, proposed a therapy with Trastuzumab deruxtecan , that is not covered by the National Health System for this type of cancer. The cost of the therapy amounts to € 13000 every 3 weeks (“. AIFA (the Italian FDA) refused the institute's request to cover the costs of the previous and cheaper treatment because there are not enough data for rare tumors like mine, despite the characteristics of the tumor are very similar to those of metastatic breast cancer (high expression of the HER2 receptors), for which the administration of deruxtecan gives good results.
I'm asking for help because I don't have many alternatives and the funds raised will be totally used to support the (very) high costs of the therapy, difficult to sustain in the medium/long term (even for persons earning a decent salary).
Organizer
Andrea Francesco Barbuti
Organizer
Macherio