incurable cancer

15.11.24

We have now taken a new MR, and the medicine, ONC201, have not been sucsessfull, so all we can do now, is to make good memories.

Can also use vipps, 95330272 (Norway)

05.10.23 they found a tumor in my daughters neck. They told us that our daughter have 1 year left to live. On her 12 years birthday she got the message that she had a tumor in her neck. It was a diffuse midtlinjegliom.

She started with radiation, 18 treatment, then a brake in the Christmas. Then she started with chemotherapy for 3 months, but the cancer spread down the spinal cord, so they stopped the treatment.

Started again with radiation to try to stop the new canser. 12 treatment. This was in april/May.

In june they found canser in her brainstorming as well, so new 10 treatment with radiation.

We want to try a medicin in France, ONC201, but cost kr 45.000 each month, about 4.500 us dollar. About 54.000 USD for 1 year. We founded and saved over 250.000 kr but missing over 290.000 kr for the medicine. It taket 4-6 month before the medicine starts to work, but we starts the treatment anyhow. Can't wait any longer.

30 july we started with the medicine!

New MR in November to see how the medicine works, then go to France to bye more medicine if its work.

Help us to help her to hopefully live longer❤️

All we want is to make good memores for her. Every day counts.

Article from media:

https://www.kk.no/livet/emine-12-har-under-ett-ar-igjen-a-leve/81457857?fbclid=IwZXh0bgNhZW0CMTEAAR0S4Mb3gzglZvrjm6JagrsA4t7nUR2Tg0rwv2FRAu1DuGerizIih8zvGSg_aem_AcT5alErfoqp5drC_vczdlaK9S1lC5R8hizvbT1NZ7XhqE3gPJueZ-ky1Wqd9kAjCwfc5xgAn22QVkgG41XvR5j-

ONC201:

https://www.chimerix.com/our-pipeline/imipridones/onc201/

Please share!!! ❤️