Harrisons Fight against HLHS

We tried for 4 years to have a baby of our own and were told that we would never have babies on our own. In July 2020, we got the best news ever! We were expecting a miracle & in September, we found out that miracle was a baby boy. At our anatomy scan, something just wasn’t right. Two appointments later we were referred to high risk and were told that Harrison had a very severe heart defect. Our world was crushed. We had no heart problems, my pregnancy was perfect. We knew nothing about HLHS. We soon learned more than we ever wanted to know. Harrison was born on March 25, 2021. He had open heart surgery on March 26, 2021 at less than 24 hours old. This surgery saved his life but he still needed 2 more surgeries. On April 23, he came home for the first time! We were overjoyed. We have been back and forth to the hospital a couple of times but we’re sent home. Harrison also has a severely leaky tricuspid valve & he is very high risk. We came to his cardiology follow up on June 9 and we’re admitted to LeBonheur due to complications. We have been told that Harrison may have to be inpatient for months, depending on when his next surgery will be. If they feel that they cannot fix his valve and complete the second round of surgery at 3 to 4 months old, we will be listed for a heart transplant. Harrison was denied disability and I am unable to work. His dad is working when he can between appointments and hospital visits. With COVID right now, if his dad goes to work, no one else can be at the hospital with me.

We are by no means begging for money, we have just been asked to create this page. We will also be featured on WREG news channel 3 PASS IT ON Wednesday June 16. Please, please, please share our story and pray for our baby boy! He needs a miracle!