Alainahs unbreakable spirit
Donation protected
Hi my name is Stacie Maxwell I'm hoping to raise money for my daughter Alainah, she has a rare condition call osteogenesis imperfecta or Brittle bone disease she’s had 47 fractures in her short 11 years. she also has scoliosis and von Willebrand's disease. She currently has a 60° Curvature in the upper part of her spine that she needs surgery to correct the Curvature, this is a spinal fusion surgery to fuse parts of her spine together with metal rods to stop the Curve. She's been going to Helen DeVoss children hospital for years getting treatment for her osteogenesis imperfecta. Working closely with Orthopedics for fractures, and tracking her scoliosis. Alainah has also been working with endocrinologist to get infusion to help slow the advisement of bone deterioration. She has also been going to Mary Freebed organization to get back braces to help slow the progress of her scoliosis. I’m asking for help because I want to bring her to Disney before her surgery. She will be laid up for months afterwards. physical therapy will be necessary to get her to her new normal. I also want to get a her a Chromebook to help her stay in school and caught up on her assignments.
Also may 19th is her 12th birthday, these would be the best gift I could give her! Alainah is Scheduled for surgery June 14th 2021!
Thanks for reading our story!
Please keep my daughter in your prayers!
This is a photo of her spine 6 months ago
Also may 19th is her 12th birthday, these would be the best gift I could give her! Alainah is Scheduled for surgery June 14th 2021!
Thanks for reading our story!
Please keep my daughter in your prayers!
This is a photo of her spine 6 months ago
Organiser
Stacie Maxwell
Organiser
Holland, MI