Help Alice alter her MS journey
Donation protected
I am Ali Clarke, I have known the Lattimore family since 2001 when our oldest children were born. We have been close friends since then
In November 2019 at the age of 15, after months of various symptoms, tests and an episode commonly referred to as ‘a relapse’ Alice was diagnosed with Relapsing Remitting Multiple Sclerosis. Rare in someone so young.
Following this journey, as close friends, has been heartbreaking to share.
This is why I am supporting Alice's fundraising for stem cell transplant
The cost of this treatment is £85,000
If you would like to be involved in any way please get in touch
The plan is to hold lots of fundraising events to raise money for this potentially life-changing treatment
Please see below for links to Facebook and Instagram
What is MS?
MS is a disease of the central nervous system where the immune system mistakenly attacks the protective coating of the nerve fibres causing communication problems between the brain and the rest of the body. Symptoms are many and varied but amongst others can include; fatigue, numbness, tingling, pain, heavy legs, vision problems, thinking and processing problems and mobility difficulties.
MS is a progressive disease which can and does impact the everyday lives of those with the condition. Everyone’s experience of MS is as unique as they are. If this disease is not controlled or managed it usually leads to permanent debilitating disability. The earlier the intervention, usually the better the long-term outlook.
Treatment
MS is usually treated with Disease Modifying Drugs with the aim of slowing progression of the disease and reducing the number of relapses.
However, another treatment, Haematopoietic Stem Cell Transplant (HSCT) has the potential to halt disease progression.
So how does this affect Alice?
A team of Neurologists and Haematologists have discussed Alice’s case and concluded that HSCT is the best option for a long-term positive outcome, she has therefore been approved for treatment under Dr Kazmi at London Bridge Hospital in London.
We are told that considering her age and stage of the disease she has an 80% chance of halting disease progression.
However, at present, she does not meet the very strict NHS criteria as her most recent MRI does not show evidence of new lesions, so despite it being agreed that this is the best way forward she is only able to proceed on a private basis.
Waiting to meet NHS criteria is not an option. Waiting for a new lesion to be detected would likely mean additional damage to the brain which may be permanent.
The cost of this treatment is £85,000
if, for whatever reason, circumstances change and raised funds are no longer needed, donations will be either returned or donated to relevant MS related charities. Donors will be consulted individually regarding preference.
If you would like to be involved in any way please get in touch
[email redacted]
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Organizer and beneficiary
Alison Clarke
Organizer
England
Lehann Lattimore
Beneficiary