Alistair and his parents

Hi, my name is ryce budnick and my fiancé tesa Sveter. We have a beautiful baby boy that is in the NICU in Galveston at John Sealy hospital. He has what’s called Neurocutaneous Melanosis. It is effected his brain and body. His condition is more rare than just that. There has only been one other report in the entire world like his and information on that baby was only a month long. So there are tons of doctors from all over coming to see my baby boy and help him. It’s especially hard for us bc I’m the only that works and we live in cypress Texas. Over an hour and a half away from the hospital. We’re trying to find a hotel near the hospital that will accept my fiancés insurance to be able to get vouchers. But they are saying that we live to close somehow and I don’t know why. We desperately need help with our situation financially because we don’t have the money to buy the things he needs when he does get to come home with us. Anything helps please. God bless everyone!!