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Amanda's Severe Health Issues

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As we ring in the new year, 2020 was an extremely difficult year for me. The transplant, that was going to change my health & life forever, was taken out from under me, 3 days before the surgery. With the pandemic surfacing, made things became even more stressful as welll. After the surgery was canceled, not even by the doctors, it was canceled by my donor who has been trying for the past 6 years and then just cancelled the surgery and disappeared, and this wasn't just a random donor this was family, grew up together. I was broken in pieces, I didn't eat, I couldn't sleep, for weeks.  After the surgeries being canceled I went through a lot mentally and physically, having to be hospitalized from May-September with  3 knee more surgeries during the 4 month stay. There is not much of my knee left, what's holding my knee together right now is just bone cement. Being that my infection rate is so high &  frequent, the options of a knee replacement are not anywhere, anytime soon at least. I am in a desperate need for a kidney transplant, that is everyone's goal right now. So right now I am considered permanently handicapped on a walker and some days I use my crutches depending on the severity of the pain that day and strength I may have. I  am unable to shower on my own, dress myself, cook for myself,  I am unable to drive either, so transportation costs a lot including having to pay for my nurse who helps me with all of these things, insurance does not cover either.. My father is also unable to make the 3hour drive anymore, due to his medical situation right now, he has to get surgery on his back and that was the only main source of support I had.  I ask if everyone can please help me reach my goal to pay for these necessities. Just seeing my knee doctor for a new cast I have to pay out of pocket because insurance doesn't cover it all. Rides to and from doctors at Albany med, dialysis three times a week it is hard to keep up with alone.. I am suffering. I don't know what else to do. Six years on dialysis has really caught up with my other organs such as my heart and lungs. It is not easy getting around, just getting to the bathroom is extremely painful and difficult to manage. I have a chair in my shower because I cant stand on my own without assistance. As time goes on, money runs out but my disabilities still stay. With that said, I really need everyone's help to keep my nurse, and keep the physical therapy as well. The  sleepless nights, are happening every single day, the pain is so bad I am screaming and crying in my sleep. waking myself up from it. There are days were I have to drag myself on the ground just to get to the bedroom or bathroom, crawling, screaming with every push and pull because the pain is everywhere from my fingers to my toes, it never stops, but I am alone that is why I need the help I do. Having SLE lupus it doesn't help with the pain either, it is making my body weaker and weaker, it gets more difficult as the years go by.. I am in so much pain every day, every hour, every minute of every day. From the dialysis it is destroying my breathing  it has become extremely difficult sometimes, after and/or during dialysis treatment that I need to wear oxygen almost all the time. It is the scariest thing ever not being able to breathe on your own. I really need support and help from everyone everyday, I just don't have the help that I most desperately need. They are planning to put me back on the kidney transplant list, and I will need all the help I could get when or if that surgery happens, hopefully sooner than later.  All and all I am asking if everyone could please donate to help me survive, help me get the support and help that I need.. It is very hard to try and do everything on my own, I am suffering every single day. all I need is help from everyone to make things a little bit easier for me.. Just dealing and suffering alone is not easy, I can't handle the worry or stress if I can't afford the nurse this week or if I can't afford an Uber to  get to my doctors appointment, or pay for my health insurance this month or the next, I need you to help me not worry anymore or even just worry a little less. My orthopedic surgeon told me I might lose my leg due to the history of infections. This would be devastating to me, all of the other things i have to deal with and now I have to worry about losing my leg. I don't like asking for money, but a lot of things are not covered because of the government cuts and medicade. I would appreciate any donations during these horrible time, any amount would be appreciated. Please help me reach or come close to my goal this year. I need more help then ever right now, and I cant do this alone, So please any amount will be amazing. Please help me over come this and get the support I truly need because I can't do this on my own anymore, I am really scared everyday, I am begging everyone to help me anyway they possibly can.. 

GOD BLESS everyone and please support &  if you do thank you for your donations!!
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    Organizer

    Amanda Brando
    Organizer
    Mechanicville, NY

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