Amariah’s Wings

Amariah has Osteogenesis Imperfecta, a brittle bone disease, she recently has underwent a major surgery. The rods in her brittle legs went through the bone and have been replaced with solid rods. She also, had to have incisions in the bone to straighten her legs to eventually provide her  with a better opportunity to walk. Amariah is currently living with myself, her aunt, and extended family. We will need some assistance in providing her with special care and help with her rehabilitation process, which will lead to her walking in the future.

The rehabilitation will require six weeks in a spica cast but now may turn to eight. She will need to wear braces on her legs after the cast is removed. When the cast is removed it is a vital one to be sure that she does not break. Over time she will continue her pamidronate transfusions and possibly start physical therapy.