Angelina is my Warrior Princess

Hi this is my daughter Angelina my miracle baby. Im here to tell her story to be her voice because she’s a living testimony of God. On 6-3-21 my whole life changed. No one really prepares you for motherhood. Everyone just tells you time flies , contractions are the worse. But no one talks about the moms that go home without there babies. It feels like the world is coming down on you but you can’t breakdown because your baby is in the hospital fighting for there life.My daughter was born with a congenital heart defect caused by Heterotaxy syndrome. Which means all her organs shifted in the wrong place including her heart. It caused her heart to be born backwards and wasn’t developed properly.You see our heart has 4 wall chambers and she was born with only 2 walls. She was a rare case that doctors couldn’t understand how she was still alive after birth. It was a rare case that a genetic clinical trial came looking for my daughter to test her and my blood to see why she was born with a heart defect. Every test came back negative they couldn’t explain why she had heart defect when I had a healthy pregnancy. A miracle ? More like a living testimony of God because she was still alive fighting for her life. After 1 week 1/2 old my baby needed heart surgery to survive. The surgeons didn’t want to do the surgery on a newborn with low survival rate especially 1 week old. Dr.khlafa was a French surgeon that took her case. The worse news was without the surgery she wasn’t going to make it and with the surgery she had a good chance of not making it. Not the kind of news a first time mom or any mom would like to hear. At that point I didn’t know what to do I remember crying of the pain I felt , the worst feeling in the world is feeling helpless of not being able to protect or save your baby’s life. So I prayed and prayed for a miracle and kept my faith in the Lord. I believe there’s a reason why my daughter was still alive. On June 14 she had her 1st heart surgery and she made it !! They fixed her narrow aorta and her pulmonary band first but they told me she needed a second surgery in a few months to survive. She spent 1month 1/2 in New York Presbyterian then almost 2months in Rehab hospital in New Brunswick. After almost 4 months she was finally home !!

On Feb 24 2022 was the day I saved my daughters life. It was the most scariest thing I ever went thru and I would never wish this to any parent. My baby wasn’t breathing anymore her heart was compressing on her lungs blocking her airways. She was really peel, weak and her face was turning all blue. I called 911 and started CPR paramedics came and we was rushed to the hospital. Now remember I said my daughter was born with Heterotaxy syndrome. Her heart was not just backwards but also in the middle of her chest. It eventually made it difficult for her to breathe she had to be intubated and put on the ventilator. After a week later my daughter was in critical condition they couldn’t wait any longer. Dr.Khlafa had told me if she didn’t get the surgery she wasn’t going to make it. But the really big problem was she was so weak from over working her heart and lungs. They were afraid she wasn’t going to make it thru surgery either. So I said yes to the surgery and prayed for a second miracle and on 3-3-22 God heard everyone’s prayers. Angelina had over 500 ppl praying for her that day they say when a lot of ppl pray together God can hear it more. Having faith and not losing it when it gets really hard is the hardest thing to do. After 8 long hours Angelina pulled thru they had to reconstruct and rebuild her heart. The doctors told me that her recovery was gonna be a really long because she had to recover from her heart and her lungs as well. This is when it got really challenging for her my daughter was intubated for almost a month she couldn’t breathe on her own and when they finally took out the tube two days later they needed to intubate her again. Somedays I was ready to give up because of how frustrated I was seeing her hooked up in machines. But day by day she was slowly recovering. Until finally they took out the tube and she was starting to breath on her own. After 2months 1/2 we finally left New York Presbyterian and got transferred to the same rehab hospital as last time. We are currently still in the rehab hospital waiting to go home. My daughter is full of life and light she’s a Warrior Princess because no matter how hard life in the hospital was for her , shes fighting everyday. All I’m asking is for your help and donation please. Unfortunately this healthcare system is completely b.s , they took so long to approve her surgery until she got into life-threatening situation and became critical. I’ve been fighting with the insurance since the beginning they didn’t approve for a nurse so I had to learn everything so I can be my daughters nurse. They didn’t approve for a pulse ox monitor or oxygen tank. I’m still getting medical bills from the first hospitalization that her insurance isn’t paying. When she was staying at New York Presbyterian the first and second time I still had to pay for parking ,transportation and food. To be honest this has been the most expensive and exhausting thing I every went thru. My daughter needs equipment for physical therapy’s and occupational therapy. Please help my daughter Angelina but most of all I would appreciate it your prayers for her recovery. Amen

Today is 6-3-22 Angelina turns 1 yr old I just wanna say thank you Lord for giving me the biggest blessing in the world !! I’m honor to be her mom