Annmarie Kelly Lyme Disease Fund
Donation protected
My name is Ann Marie Kelly and I am living with Chronic Lymes Disease and have been most of my life.
Everyday brings me new challenges and I wake up every morning and and wonder how will I get through the day.
So let me tell you a little bit about Lymes Disease is an Inflammatory disease caused by a bacteria called Borellia Burgdorferi a spirocete which is transmitted by the deer tick to humans. An infection may present as a bulls eye rash at site of tick bite but this only happens in 50% of cases, the other cases present as flu like symptoms. Once infected it can affect and inflame many types of tissues and be carrying other disease called co.infections causing an array of diverse symptoms and when left untreated it can effect your heart, nervous system, muscles and joints leaving people living poor quality lives unable to do the basic day to day things.
People with Lymes suffer with debilitating fatigue, severe headaches, sinus infections, swollen painful joints that migrate around the body to different areas, ears ringing, light sensitivity, palpitations and many more.It is believed that Lyme is the "great imitator" imitating many other illnesses which can make this disease difficult to diagnose.
So who would have thought that little tick bite could bring so much pain and fear into my life?
An unusual circular red bulls eye rash, what could this be I thought? It was a tick bite, I was maybe 9/10 years of age at the time, a new comer to life in the countryside. I attended a Children's Hospital and I began a weeks course of anti biotics and sent on my way home. The years to follow produced some erratic symptoms that went as quick as they came. Maybe it was puberty I thought at the beginning,later on blaming working too long of hours. It turned from one excuse to another. My brain fog became more apparent forgetting people's names,where I was going,what I needed to do. I had an operation 5 years ago and that's when life started to become a little crazier,the symptoms started to persist longer affecting daily life.
My head pounded much worse and constant sinus infections.Most days i felt like i had a fever, my body can't cope with any temperature change hot or cold and over years I've tried my best to avoid sunshine, heat induced products, even using a hot oven I can't manage and hot food and hot drinks make me flare really bad. I was working all week and commuting for 2 hours a day on top if that, I would spend all weekend on couch not able to move to try get some energy to get through the following week. This debilitating fatigue took over me and I was no longer able to keep up with work and reluctantly resigned from my job recently.
During 5 years I seen many specialists with no answers, had numerous tests done, 24 hour blood pressure monitor, 24 hour urine tests, hormones tests ,internal ultra sounds, colonoscopy, mri scan, chest x-ray and hundreds of blood tests, none of which brought any light to the matter.
My instincts told me Lymes but this was dismissed completely so I decided to get my bloods done in Armin Labs in Germany. My heart pounded as I opened the email containing my results and sure enough I had Lyme and many co-infections including Babesia, Bartonella, Elchricia, Rickettsia,Mycoplasma, ebv, parvo virus.
During this period my body got really weak, chest pains and electric shocks up my arms and fingers due to nerve issues. I cry most days cause I feel my body is just lying here dying slowly bit by bit. I suffer multiple symptoms all day every day with very few good days anymore, I sleep but I wake tired. I struggle with who I am now. I look in the mirror and I don't know who's looking back anymore. I dont seem to know this sad, angry, emotional, heartbroken girl in constant pain. I don't know who Ann Marie is anymore, only this person called Lyme who decides who I am today, and if I can visit a friend or take a simple shower or if I have the energy to have the company of the people i love most. Lyme compresses my chest so tight sometimes I can't breathe which makes my heart race so hard I think I'm having a heart attack. Lyme makes me question will I wake up in the morning at all?? My symptoms are always there and always unpredictable!
'I AM LYME ' !
So here I am today in a place I thought I'd never be reaching out to people to help me try to get well again. My best chance of treatment is to go abroad as chronic lyme is not recognised or treated in Ireland. To have these treatments is extremely expensive and not something I could ever afford on my own. I am yet to see a Lyme specialist in Ireland and will do in April 2019 so i will have specific details on my treatment plan but from my extensive research on this condition and my symptoms, treatment ranges from €40,000 upwards depending what treatment is required. In the meantime, i am undertaking alternative and holistic therapies.I am currently out of work as a result of my condition and regaining my health seems a millions miles away from me now, so I'm really hoping you guys can help me get on my road to recovery by making a donation to my 'fund me' page and get this lymes disease put back in it's box! Getting rid of this disease and gaining my life back means the absolute world to me. It means I can do the things most 34 year olds do instead of being house bound most of my life. It means I can enjoy the beauty of life and living again and to never take even smallest things in life for granted. I would like to express my appreciation and gratitude to anyone considering a donation to my 'fund me' page and for y'all get liking and sharing
Amo x
Everyday brings me new challenges and I wake up every morning and and wonder how will I get through the day.
So let me tell you a little bit about Lymes Disease is an Inflammatory disease caused by a bacteria called Borellia Burgdorferi a spirocete which is transmitted by the deer tick to humans. An infection may present as a bulls eye rash at site of tick bite but this only happens in 50% of cases, the other cases present as flu like symptoms. Once infected it can affect and inflame many types of tissues and be carrying other disease called co.infections causing an array of diverse symptoms and when left untreated it can effect your heart, nervous system, muscles and joints leaving people living poor quality lives unable to do the basic day to day things.
People with Lymes suffer with debilitating fatigue, severe headaches, sinus infections, swollen painful joints that migrate around the body to different areas, ears ringing, light sensitivity, palpitations and many more.It is believed that Lyme is the "great imitator" imitating many other illnesses which can make this disease difficult to diagnose.
So who would have thought that little tick bite could bring so much pain and fear into my life?
An unusual circular red bulls eye rash, what could this be I thought? It was a tick bite, I was maybe 9/10 years of age at the time, a new comer to life in the countryside. I attended a Children's Hospital and I began a weeks course of anti biotics and sent on my way home. The years to follow produced some erratic symptoms that went as quick as they came. Maybe it was puberty I thought at the beginning,later on blaming working too long of hours. It turned from one excuse to another. My brain fog became more apparent forgetting people's names,where I was going,what I needed to do. I had an operation 5 years ago and that's when life started to become a little crazier,the symptoms started to persist longer affecting daily life.
My head pounded much worse and constant sinus infections.Most days i felt like i had a fever, my body can't cope with any temperature change hot or cold and over years I've tried my best to avoid sunshine, heat induced products, even using a hot oven I can't manage and hot food and hot drinks make me flare really bad. I was working all week and commuting for 2 hours a day on top if that, I would spend all weekend on couch not able to move to try get some energy to get through the following week. This debilitating fatigue took over me and I was no longer able to keep up with work and reluctantly resigned from my job recently.
During 5 years I seen many specialists with no answers, had numerous tests done, 24 hour blood pressure monitor, 24 hour urine tests, hormones tests ,internal ultra sounds, colonoscopy, mri scan, chest x-ray and hundreds of blood tests, none of which brought any light to the matter.
My instincts told me Lymes but this was dismissed completely so I decided to get my bloods done in Armin Labs in Germany. My heart pounded as I opened the email containing my results and sure enough I had Lyme and many co-infections including Babesia, Bartonella, Elchricia, Rickettsia,Mycoplasma, ebv, parvo virus.
During this period my body got really weak, chest pains and electric shocks up my arms and fingers due to nerve issues. I cry most days cause I feel my body is just lying here dying slowly bit by bit. I suffer multiple symptoms all day every day with very few good days anymore, I sleep but I wake tired. I struggle with who I am now. I look in the mirror and I don't know who's looking back anymore. I dont seem to know this sad, angry, emotional, heartbroken girl in constant pain. I don't know who Ann Marie is anymore, only this person called Lyme who decides who I am today, and if I can visit a friend or take a simple shower or if I have the energy to have the company of the people i love most. Lyme compresses my chest so tight sometimes I can't breathe which makes my heart race so hard I think I'm having a heart attack. Lyme makes me question will I wake up in the morning at all?? My symptoms are always there and always unpredictable!
'I AM LYME ' !
So here I am today in a place I thought I'd never be reaching out to people to help me try to get well again. My best chance of treatment is to go abroad as chronic lyme is not recognised or treated in Ireland. To have these treatments is extremely expensive and not something I could ever afford on my own. I am yet to see a Lyme specialist in Ireland and will do in April 2019 so i will have specific details on my treatment plan but from my extensive research on this condition and my symptoms, treatment ranges from €40,000 upwards depending what treatment is required. In the meantime, i am undertaking alternative and holistic therapies.I am currently out of work as a result of my condition and regaining my health seems a millions miles away from me now, so I'm really hoping you guys can help me get on my road to recovery by making a donation to my 'fund me' page and get this lymes disease put back in it's box! Getting rid of this disease and gaining my life back means the absolute world to me. It means I can do the things most 34 year olds do instead of being house bound most of my life. It means I can enjoy the beauty of life and living again and to never take even smallest things in life for granted. I would like to express my appreciation and gratitude to anyone considering a donation to my 'fund me' page and for y'all get liking and sharing
Amo x
Organizer
Annmarie Amo Kelly
Organizer