Hello my name is Ariel Tonkel and I have a genetic terminal illness called Cystic Fibrosis. It primarily is damaging my lungs.
For the past two years I've been evaluated and monitored to be eventually listed for a double lung transplant. However, on June 9th, 2023 I made the major mistake of trying to take my own life and was nearly successful. Because of this, my transplant team needs to see proof of mental stability for a minimum of a year. The problem is I don't know if my lungs have a year or more in them. My lung function this summer was as low as 19% with my small airways at only 4% currently. My doctor told me that if I were to continue this decline and get sicker faster than I can qualify for a transplant they would "assist in palliative care and make sure I die with dignity."
Needless to say, I'm terrified. I am scared if I do make it transplant that I'd be so sick by than everything will be in a rush and that's why I am asking for your help now instead of when I don't have much time. UPDATE: It has now become clear that I will not make it to transplant and was advised to have extra funds for the more frequent and intensive treatment I will need to prolong my life as long as possible. Essentially this money will go towards medical expenses either way. I am on disability and cannot work so I hate to say it but I am desperate.
Absolutely anything helps and I will be forever grateful. Thank you and I promise as long as I'm alive to give back.
For the past two years I've been evaluated and monitored to be eventually listed for a double lung transplant. However, on June 9th, 2023 I made the major mistake of trying to take my own life and was nearly successful. Because of this, my transplant team needs to see proof of mental stability for a minimum of a year. The problem is I don't know if my lungs have a year or more in them. My lung function this summer was as low as 19% with my small airways at only 4% currently. My doctor told me that if I were to continue this decline and get sicker faster than I can qualify for a transplant they would "assist in palliative care and make sure I die with dignity."
Needless to say, I'm terrified. I am scared if I do make it transplant that I'd be so sick by than everything will be in a rush and that's why I am asking for your help now instead of when I don't have much time. UPDATE: It has now become clear that I will not make it to transplant and was advised to have extra funds for the more frequent and intensive treatment I will need to prolong my life as long as possible. Essentially this money will go towards medical expenses either way. I am on disability and cannot work so I hate to say it but I am desperate.
Absolutely anything helps and I will be forever grateful. Thank you and I promise as long as I'm alive to give back.
Organisator und Spendenbegünstigter
Melissa Mulligan
Spendenbegünstigte