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For those who would like to know more:
What is ME?
Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). In many parts of the world, it is commonly (though incorrectly) called Chronic Fatigue Syndrome.
It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound. For moderate to severe patients, living with ME is like living with late-stage cancer, advanced stage AIDS, or congestive heart failure for decades.
There is no unified definition or diagnostic criteria for M.E. Common symptoms include significant physical or mental fatigue, post-exertional malaise (a perverse response to normal exertion), debilitating pain, sleep dysfunction, cognitive dysfunction, neurological impairment, sensory sensitivity and severe immune dysfunction. The majority of ME patients also have postural orthostatic tachycardia (POTS).
Is there a diagnosis for ME?
There is no single laboratory test that can diagnose ME. Patients have consistent biological abnormalities demonstrated in research settings. Many specialist physicians use these tests to aid in forming a diagnosis, although the diagnosis is at present most frequently made by excluding other conditions that cause similar symptoms and by using one of several diagnostic criteria. Due to lack of education and awareness about ME, many patients are undiagnosed, misdiagnosed with other conditions, or told that their severe disabilities are imagined.
My ME/CFS Awareness Effort Event Link:
https://www.facebook.com/events/1229769917081008/
or
https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj
I urge you to contribute for my cause - to help me raise awareness and $7,500 or more for this debilitating
invisible illness. Your contribution and your good wishes in any amounts are most welcome and most appreciated!
I am most deeply thankful to you for reading my page and for helping my cause.
Shoes sent by patients too ill to attend
What is ME?
Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). In many parts of the world, it is commonly (though incorrectly) called Chronic Fatigue Syndrome.
It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound. For moderate to severe patients, living with ME is like living with late-stage cancer, advanced stage AIDS, or congestive heart failure for decades.
There is no unified definition or diagnostic criteria for M.E. Common symptoms include significant physical or mental fatigue, post-exertional malaise (a perverse response to normal exertion), debilitating pain, sleep dysfunction, cognitive dysfunction, neurological impairment, sensory sensitivity and severe immune dysfunction. The majority of ME patients also have postural orthostatic tachycardia (POTS).
Is there a diagnosis for ME?
There is no single laboratory test that can diagnose ME. Patients have consistent biological abnormalities demonstrated in research settings. Many specialist physicians use these tests to aid in forming a diagnosis, although the diagnosis is at present most frequently made by excluding other conditions that cause similar symptoms and by using one of several diagnostic criteria. Due to lack of education and awareness about ME, many patients are undiagnosed, misdiagnosed with other conditions, or told that their severe disabilities are imagined.
My ME/CFS Awareness Effort Event Link:
https://www.facebook.com/events/1229769917081008/
or
https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj
I urge you to contribute for my cause - to help me raise awareness and $7,500 or more for this debilitating
invisible illness. Your contribution and your good wishes in any amounts are most welcome and most appreciated!
I am most deeply thankful to you for reading my page and for helping my cause.
Shoes sent by patients too ill to attend
Organizer
Arpita Sheth
Organizer
Morristown, NJ
New Jersey Chronic Fatigue Syndrome Association Inc (Njcfsa)
Beneficiary