As we wait for King’s heart, we CAN’T be apart!!
Donation protected
Please help if you can!!
My sons King (5y.o.), Kason (12y.o.) and I are experiencing a major crisis.
My youngest son, King, is 5 years old and was born with hypoplastic left heart syndrome. His health has been declining since birth. I have never not been worried about my baby. Recently, things have become worse and we have been told that without a heart transplant, King will not survive. He is currently on a donor list awaiting the right match. King and I have been living at Children's Hospital for four months, where he receives constant care and multiple IV meds. And we hope and we pray for a miracle.
While at the hospital with King, Kason had been living at our home and attending his school under the care of a family member. Two weeks before Christmas, we unexpectedly learned that the family member was no longer able to provide the appropriate care for Kason at home. After exhausting every imaginable possibility, Kason came to me where we were offered temporary housing near the hospital.
Kayson's school approved online learning and we spend our days together as a family in King's hospital room.
Hospital policy will not allow more than one family member to stay in a patient room while in ACCU.
Several options have been suggested to me.
1. Place Kason, who is emotionally fragile because of our five year battle with King, in a foster care home allowing me to remain at King’s side. I know this would be emotionally devastating to Kason.
2. Take King home so that I can care for Kason, which means that King will most certainly die.
3. Find $30 a day. $30 a day…. to pay for housing so that Kason and I can be by King’s side while we wait for our miracle.
I feel like I am being asked to choose between the lives of my two sons. What mother could do that?
My goal is to ask for $8,000 in donations. I believe this might allow time for the heart, the surgery and recovery…
My wish is for the miracle of being at home with my boys and loving and caring for them each day with gratitude that we received our miracle!
King was born on Valentine’s Day, the day of hearts!
Please help our family to remain together and achieve our goal.
We thank you for every donation, no matter how big or small!
Fundraising team (2)
Tashia Baker
Organizer
Fall River, MA
Diane Farina
Team member