Ashlyn Wise ( Medical Fund)

Ashlyn Wise is organizing this fundraiser on behalf of Karie Wise.

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My name is Ashlyn Wise and this is my story, I have been sick since 2008. My condition has continued to get worse over time. I was recently diagnosed with Mast Cell Disease, Chronic Idopathic Urticaria, Urticarial Vasculitis, and Aquired Angioadema. This condition I suffer with is not heredity but is an Auto Immune Deficiency. There is no cure and it has fatal progression. There is not alot of medical research or treatment for my condition. They can only manage my symptons. I will need medical treatment for the rest of my life and eventually in Home Health Care. I recently under went a bone marrow biopsy and are awaiting results, if they find Cancer or Mast Cells in my marrow I am being referred to the Mast Cell Cinic in Cambridge, Mass. This is the clinic who specializes in Mast Cell Disease. My doctor's have also stated that they would send me to NIH which is Bethesda Hospital in Maryland. There they would study my condition and do a full work up. The condition I live with on a day to day basis has greatly impacted my life. My doctor's have put me homebound, and I was suspended from College due to my medical and excessive absences. I was told I would need to take online classes. I can't resume classes until Spring of 2017. My major is Clinical Sociology and I chose this because I want to make a difference in the lives of others. My condition impacts my life everyday because I go to bed feeling well and I wake up sick due to my chronic fatigue. My world consits of doctor appointments on weekly basis. We travel to Gainesville for all of my medical which is 2 hours from where I live. I have appointments on August 8th, 9th, 11th, and 16th. My medical is coming to a close meaning my doctors can no longer offer me care. I will need to relocate to another state to seek medical treatment at a speciality hospital. We find out my results on Aug. 9th, 2016 from my bone marrow biopsy. Depending on the results, I may need a bone marrow transplant. In many ways this disease has greatly made life very difficult for me. They found mast cells in my stomach and my colon. My body does not produce protein and it is at war with itself. I have a lot of stomach issuses and suffer with chronic pain, I also have Mitral Valve Prolapse and Long QT Syndrome. My body rejects 1st and 2nd generation antibiotics. If I'm sick they must put me in the hospital, pre-medicate me and give me medicine through an I.V. I am allergic to my own sweat, temperature control, foods, enviromental, and I get sick very easily. I never know what my body will react to because of the Mast Cell Disease. When I have a severe reaction a lot of times it sends me into anaphlaxis shock. I break out in hives, blisters, and have difficulty breathing and I also feel as if my body is burning from the insde out and I itch really bad. I always pre- medicate before I shower and eat. This means I take Benadryl and Zyrtec, these are anti-histamines to help keep my immune system calm. I am allergic to Sulphur/Sulfate and was told I need to match my water temperature to my body temperature and eat all organic foods. I cannot have any dyes in my medication or drinks. My doctors have told me my body is at war with itself and it is always firing meaning reacting. I am asking friends and family to go on my journey so that I may get the best possible medical care. Life has become very difficult for me and there is nothing normal about it. I know I will need medical care for the rest of my life. My family is very supportive and are doing everything they can for me. My parent's have become my caretakers and my best friends. They accompany me to all of my medical appointments and have become my biggest advocates. The purpose of this fund raiser is to help pay for my medical expenses and to relocate me to a Speciality hospital that can care for me. It will also help pay for travel expenses and my medications and any co- payments. Please understand I am being tested for cancer. My journey is just starting out even with the current diagnosis stated above they are just connecting the dots. We still need to find the under lining problem. I am going to post pictures so you may understand how my body reacts. After my final appointment on the 16th, Shands can no longer go any further with me. I will need to leave the State of Fl to continue care else where. My parent's are prepared to do whatever needs to be done and to travel where ever my journey takes me. Thank you to everyone who reads my story and is willing to support my medical. Please spread the word on Mast Cell Disease as it is a very rare disease. I have had Genetic testing and this disease is an Auto Immune Deficency. I have tried a Xolair Infusion and my body rejected it and I went into anaphalixs shock and was hospitalized for 4 days. To help you better understand what I suffer with on a day to day basis, I will describe how each disease affects me. Urticarial Vasculitis is a condition that causes fluids underneath the skin resulting in hives and blisters and Chronic Idiopathic Urticaria is the inflammation of the skin. Acquired Angioademia is a rare blood disorder which means that my body lacks or doesn't produce protein and I am also Auto Immune Compromised which means that my body doesn't produce antibodies of any type. I am now 21 years old and just starting out my life. I am unable to work due to my condition and my medical appointments. I have applied for SSI and I am currently appealing their decision. I have health insurance through my father and it pays for 80 percent of my medical, we are responsible for 20 percent and also co-insurance. Sometimes they do not cover certain tests or prescriptions. Thank you so very much to all who have read my story and are willing to carry me through my difficult hour. I am so very grateful to anyone who contributes to my cause.