Ashton Howard and Frankie could use our help.

Hi, my name is Becky Clear, and I am fundraising for Ashton Howard. Ashton comes from a family of people who act when they see a need. My family is one of many who have been impacted by this family that puts LOVE into ACTION. If you have ever witnessed their hard work and selflessness, count yourself blessed. It's when tragedy strikes, and the worst happens that you understand the level of their dedication to helping those in crisis.

Now, we have an opportunity to give back and show them the support they have shown so many of us.

Ashton has a rare brain condition called Arnold Chiari Malformation Type 1. The lower part of his brain presses on and through an opening in the base of his skull and cerebellum into his spinal canal. This restricts the flow of cerebrospinal fluid between his head and his spinal cord. There is no cure for Chiari Malformation, and it is a progressive disease. As a result, it can cause multiple neurological issues.

Ashton's symptoms include headaches that are much more painful than migraines, neck pain, neck stiffness, dizziness, burning sensations, confusion, light-headedness, insomnia, extreme body aches, brain fog, memory loss and more. The symptoms are progressing, and Ashton needs surgery that is not performed in the United States. Despite the extreme amount of pain Ashton is in, he continues to work at a coffee bar he owns in LaCygne, KS, when he can. There are days that his symptoms keep him from working, but when you do see him, you’ll be greeted with a smile and would never know he is experiencing such a difficult daily life.

Ashton is scheduled for the Filum Terminale Secitioning Surgery in Barcelona on Oct. 24, which shows very promising results. The surgery addresses an overly tight, thick, or inelastic filum that is considered unhealthy and considered to be the source of his symptoms and the descent of the cerebral tonsils. Ashton’s mother, Frankie, has connected with many patients who have had the surgery and have experienced symptom relief. This diagnosis has no cure, and again, it is considered a progressive disease. The surgery helps slow the progression and allows patients to lead relatively normal lives. At 19 years of age, Ashton is anxious to put his health issues behind him and begin a new chapter.

Unfortunately, these surgeries are not performed in the US. Therefore, insurance will not cover the procedures. All medical costs will be paid out of pocket by the patient. The family has already paid for 6 MRIs trying to get the proper diagnosis. We are fundraising to cover the out-of-pocket medical costs.

Anything you can donate to help make this a reality would be a great blessing. We also appreciate prayers for Ashton.