Baby Maddie

Our beautiful granddaughter, Baby Madeline was born with Prader-Willi Syndrome, a rare complex genetic disorder, that is a lifelong condition with no cure. At the request of friends and family who have asked how to help during this time, we have set up this fund to assist the family with many unexpected expenses related to this situation. In addition to the multitude of medical specialists and needs, we would love to be able to seek out alternative care to supplement what insurance covers: back braces, specialized footwear, and many other therapeutic devices. She is now at home on oxygen and feeding tubes, requiring round-the-clock care, impacting  a reduction  of income to the family. Thank you for your support in helping  Maggi, Frank and Amelia provide the best possible environment  for  Baby Madeline.