Ava Louise Support For Mummy & Daddy

From the day Ava was born she touched many of hearts.

Ava had a condition called Allagiles Syndrome Alliance that affected her liver, and meant she needed a liver transplant. 

Allagile syndrome is a rare decease, a autosomal dominant, genetic disorder associated with liver, heart, eye and skeletal abnormalities, facial features and more. ALGS fighters may have a combination or severity of these symptoms, making ALGS one of the most difficult diseases to diagnose or treat. 

Ava Louise really was the miracle baby of the family.

Us a family had the privilege to send 3 whole weeks with Ava before her transplant journey began, all thanks to Ava’s consultant Murumbo.

Ava’s transplant journey began on the 29th December 2021 @ The Leeds Children’s Hospital. Ava’s transplant took place on the 26th May [email redacted]m. Ava’s mum Hannah donated a part of her liver to save her baby girls life.

Before the transplant Ava fought through many battles which she over come with such strength. These were Kasai Surgery; Broviac Lineinsurgen, Perrental Nutrition, Ecoli Infections, Endoscopy and Blood Transfusions.

As a family we had our first scare on Tuesday 31st [email redacted]m, where mum, Hannah and dad, Lewis had a call that Ava was having a cardiac arrest where we lost her for 4 minutes.

Ava Louise sadly took her last breaths at 2.00am on Wednesday 1st June, with both grandparents there, Grandma Sarah, Grandad Dave, Grandma Sharon, mummy Hannah and Daddy Lewis.

Auntie Sammie and Chloe shortly after arrived to say their goodbyes.

Ava Louise was the happiest, smiliest, sassiest baby despite of her condition.

As Ava’s aunties, we want to raise money to get something specially made for Mum and Dad with Ava’s ashes.

Ava’s mummy and daddy turned just 21 last month which they spent in hospital with Ava. 

If enough money is raised, we would like to also create a memorial for Ava, in a special place where her loved one’s can visit, anything more will be towards Ava’s resting day. 

She was loved dearly by all her family and both families are broken, life will never be the same without her infectious smile & beautiful face.

Rest Peacefully and In Paradise Baby Angel Ava 25.09.2021 - 01.06.2022.