B.G. Foundation

It is with the heaviest of hearts that our Bradlee has passed on. She has gone to her new home up in heaven where she is running and laughing and of course being a beautiful little girl.

Please keep Bradlee's family in your prayers at this time.

The funds that were donated and will be donated will be used by the family for medical and funeral costs.

Hello all!

This GofundMe has been created for a special 2 year old little girl who was recently diagnosed with a rare genetic mutation called Leigh Syndrome with a Surf1 gene mutation. Unfortunately, there is no cure. However, there is experimental genetic testing that has been proven to show positive results in aiding a better quality of life for these individuals. The main reason for this page is to help raise the money for the treatment and to aid in other medical expenses for the family.

About Leigh Syndrome

Leigh syndrome (sometimes called Leigh’s disease) is a rare and severe neurometabolic disorder and a type of primary mitochondrial disease. Mitochondria extract energy from your food to help your cells do work. All of the cells in our body (except red blood cells) have mitochondria.

What is Leigh syndrome?

Leigh syndrome is a rare and severe neurometabolic disorder with symptoms usually starting between the ages of 3 months and 2 years. Leigh syndrome can also occur in teenagers and adults, although this is less common.

Newborns with Leigh syndrome seem healthy at birth, and may reach major milestones on time. Yet the disease begins interfering with function of the central nervous system. That is why children with Leigh syndrome lose these abilities or experience other physical or developmental delays.

How many people does Leigh syndrome affect?

Leigh syndrome affects about 1 in 40,000 individuals. However, this number may be underestimated. Population variations, misdiagnosis, and even a reluctance by some medical professionals to use the term “Leigh syndrome” likely impact measurements of how many people actually have the disease.