Mccubbing Family Medical Fund
Donation protected
Kole Jacob Cooper
Help Kole get his liver transplant!!!
Kole and his twin brother Kage were born with Urea Cycle Disorder, 1 in 30,000 children will get this disorder (it is extremely rare). The life expectancy for a child with Urea Cycle Disorder is not encouraging. About half of children with newborn onset disease do not survive to age 5 years. Kole’s life expectancy is between five(5) and eight(8) years old – He will be 6 years old in September. Kole’s brother Kage passed away in March of 2015 at 4 years old from Urea Cycle Disorder. – You may want to Google this but here is a definition of what it is….
Urea cycle disorder is a genetic disorder caused by a mutation that results in a deficiency of one of the six enzymes in the urea cycle. These enzymes are responsible for removing ammonia from the blood stream.
So for most of us we eat food and our liver breaks our food down to create the necessary protein we need for our body to grow and develop. For Kole, he cannot eat food as his body does not have the ability to break the food down into protein, instead the food causes Kole’s ammonia levels to increase. Increased ammonia levels are life threatening. They can lead to coma’s and eventually death if they are not maintained. Kole has never had meat, dairy, bread and must eat fruits and vegetable in limited moderation. Kole takes a special metabolic cocktail 4 times a day and overnight- because of the extensive use of medication and the metabolic cocktail Kole needs a feeding tube directly into his stomach – Gastrostomy Tube (G –Tube).
John and Crystal McCubbing accepted Kole into their home after he had a not so great home life, where his needs were not being met. Kole is their child but not thier biological child. They love him like he is their own. They also have three other Children Ethan (15), Jorja (9) and Calissta (6). They all refer to Kole as their Brousin (Brother +Cousin).
In order for Kole to live, he MUST have a liver transplant. He is currently in surgery for the liver transplant at the Sick Children’s hospital in Toronto, Ontario. An organ transplant is a huge commitment and to even have been considered for the transplant list it has taken a lot of commitment from John and Crystal to be able to go to Toronto. After Kole gets his transplant he will be in the hospital for 3 months. For them this means one of them not being able to work at their job for three months. This is devastating to their income because when you think about it, they have three other children at home who still need to be provided for. It also means being away from their family for an extensive amount of time.
Once Kole gets his liver transplant he will be a “normal” child. He will only be required to take 1 medication a day due to his transplant, but all of the other medication and metabolic cocktails will be gone. If you ask Kole, he will tell you he is going to “Eat a cheeseburger and Peanut Butter”.
Help Kole get his liver transplant!!!
Kole and his twin brother Kage were born with Urea Cycle Disorder, 1 in 30,000 children will get this disorder (it is extremely rare). The life expectancy for a child with Urea Cycle Disorder is not encouraging. About half of children with newborn onset disease do not survive to age 5 years. Kole’s life expectancy is between five(5) and eight(8) years old – He will be 6 years old in September. Kole’s brother Kage passed away in March of 2015 at 4 years old from Urea Cycle Disorder. – You may want to Google this but here is a definition of what it is….
Urea cycle disorder is a genetic disorder caused by a mutation that results in a deficiency of one of the six enzymes in the urea cycle. These enzymes are responsible for removing ammonia from the blood stream.
So for most of us we eat food and our liver breaks our food down to create the necessary protein we need for our body to grow and develop. For Kole, he cannot eat food as his body does not have the ability to break the food down into protein, instead the food causes Kole’s ammonia levels to increase. Increased ammonia levels are life threatening. They can lead to coma’s and eventually death if they are not maintained. Kole has never had meat, dairy, bread and must eat fruits and vegetable in limited moderation. Kole takes a special metabolic cocktail 4 times a day and overnight- because of the extensive use of medication and the metabolic cocktail Kole needs a feeding tube directly into his stomach – Gastrostomy Tube (G –Tube).
John and Crystal McCubbing accepted Kole into their home after he had a not so great home life, where his needs were not being met. Kole is their child but not thier biological child. They love him like he is their own. They also have three other Children Ethan (15), Jorja (9) and Calissta (6). They all refer to Kole as their Brousin (Brother +Cousin).
In order for Kole to live, he MUST have a liver transplant. He is currently in surgery for the liver transplant at the Sick Children’s hospital in Toronto, Ontario. An organ transplant is a huge commitment and to even have been considered for the transplant list it has taken a lot of commitment from John and Crystal to be able to go to Toronto. After Kole gets his transplant he will be in the hospital for 3 months. For them this means one of them not being able to work at their job for three months. This is devastating to their income because when you think about it, they have three other children at home who still need to be provided for. It also means being away from their family for an extensive amount of time.
Once Kole gets his liver transplant he will be a “normal” child. He will only be required to take 1 medication a day due to his transplant, but all of the other medication and metabolic cocktails will be gone. If you ask Kole, he will tell you he is going to “Eat a cheeseburger and Peanut Butter”.
Organizer
Melissa Barr
Organizer
Regina, SK