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Help Baby Jiraiya who has been diagnosed with Brain Cancer

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Hannah and Jordan are the young parents of Kamryn and Jiraiya. Since the birth of their first son Kamryn, they have been in and out of the hospital. Kamryn was born in April of 2019. He was sick at birth. He had his first hospital visit at 3 weeks old and by 5 months old, he was diagnosed with Chronic Granulomatous Disease (CGD). This disease is a genetic disorder where white blood cells cannot kill certain types of bacteria essentially causing his immune system to not function properly. Kamryn has had chemo and a bone marrow transplant at 6 months old. He is doing well but does still get monthly mouth sores from CGD. He takes medication daily to help him. Jiraiya was born July of 2021. He seemed healthy until recently. In January of this year, he was taken to the hospital because he was sleeping a lot and having sub-clinical seizures. It was discovered that he had a tumor in his head about the 1/4 size of his brain. The tumor was removed within 24 hours. The surgery to remove the tumor was about 9 hours and he had to remain in the hospital for about a week. The family patiently waited as the tumor was being tested. The results came back on March 14, 2024 that Jiraiya has Embryonic Malignant Brain Tumor with a mutation of CNS Neuroblastoma (Brain Cancer). He will be going through several treatments of Chemo as well as Stem Cell Transplants. This plan for treatment will require him to be in and out of the hospital for quite some time. This will cause the family additional hardships that they were not prepared for time off work. Assistance is needed to care for Kamryn as well as trying to make sure they can keep a roof over their head. We are asking for any donation to help them get through this difficult time. If you are not comfortable donating on GoFundMe, please reach out to myself or Kathy Brown.
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Donations 

  • Bobbi Reichtell
    • $50
    • 1 mo
  • Jessica Fivecoat
    • $20
    • 3 mos
  • Joe Bedell
    • $15
    • 3 mos
  • Anonymous
    • $16
    • 3 mos
  • Anonymous
    • $17
    • 4 mos
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Organizer and beneficiary

Jessica Schultz-Douglas
Organizer
Saint Charles, MO
Kathy Brown
Beneficiary

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