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Help baby Kohen get the Cunningham Brace
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Hi my name is Courtney and I wouldn't usually do anything like this or agree with anyone doing this .. but my son got diagnosed with talipes at my 20 week scan and the hospital were very minimalistic when explaining to me what life would be like with a baby with talipes.
They put him in casts for 5 weeks and then gave me some boots and bars that he has to wear until he’s 5 years old.
I honestly didn’t know what it was going to be like him wearing these but it’s nearly been 3 months and it’s been very difficult.
He hates them. It makes me so sad to see how much he can kick his legs and move about when he doesn’t have them on and he’s supposed to wear them 23 hours out of the day. He cannot wear normal shoes & he isn’t rolling over or picking his legs up as they’re too heavy.
Studies also show that hospitals have reported that about 1 out of every 4 of the babies treated with this approach have relapsed and are having to have surgery in the future.
I have been researching other resolutions to his foot problem and I came across the Cunningham brace.
It is basically a flexible brace that is only fitted to the affected leg and allows movement for all of the normal activities such as crawling, rolling, standing and even walking.
The brace is always gently stretching the baby into the correct position though, so it is acting as though the therapist is always there manipulating and correcting the foot rather than fixing it rigidly in a pre-determined position.
This brace is also only worn for 2 years minimising uncomfortable situations for your child.
The reason behind me doing this is because the NHS does not cover the whole cost of the Cunningham brace, not even a fraction and I wanted to use my platform for a good cause.
Theres nothing I wouldn’t do for my little boys comfort and happiness and even if we raised half the amount towards the treatment I’d be so grateful and appreciative.
I just want my boy to have a normal childhood and not be uncomfortable anymore
Organizer
Courtney Middleton
Organizer