Baby Robert Ebinger's Story

As many of you know Robert was born with a genetic disorder, PONTOCEREBELLA

HYPOPLASIA Type 1. Robert spent the first 7 weeks of his life in the NICU.

On January 24, 2023 Robert was taken by ambulance back to the hospital because he wasn't breathing properly and had turned blue. From there everything happened very quickly. He is now in the pediatric ICU on a ventilator recovering from Rhinovirus. Since Roberts condition is a neurological disorder, his low muscle tone cannot help him fight off viruses without medical attention.

Megan and Daniel have been staying at the hospital with Robert around the clock. With that being said, they will not be returning to work until Robert is stabilized and returning home. With this rare disorder that Robert has been diagnosed with comes many doctor and hospital bills. I am creating this page to set the ability for friends and loved ones to donate so Megan and Daniel can direct their time, energy and focus on loving and caring for their baby Robert.