be breath for Mustafa Yagiz

Mustafa Yagiz was diagnosed with spinal muscular atrophy (SMA) type 1. In order to have a better future and especially to live, Mustafa Yagiz has to receive a genetic therapy called Zolgensma. Zolgensma costs € 1,9 million. Zolgensma approval only covers children under 2 years.

We have a fight against the clock. He must receive his treatment as soon as possible, before he loses his musceles and skills. We are supporting as a charity organisation ASYA Hilfsorganisation e.V. litte "braveheart" Mustafa Yagiz.

 

Your donations will be greatly appreciated. This campaign is dedicated exclusively to Mustafa Yagiz.

 

Spinal Muscular Atrophy (SMA) is a neuromuscular disease, which is manifested by a progressive loss of muscle strength that affects the ability to walk, swallow and breathe. And it is the first genetic cause of infant mortality. It is caused by a mutation in the survival gene of motor neurons 1 (SMN1). This gene is responsible for the production of a protein that is critical for the nerves that control our muscles. Without this protein, these neurons cannot function properly and die at any given time. And there is a genetic therapy called "Zolgensma" approved by the US Food and Drug Administration (FDA) for children under 2 years old and under bodyweight of 13,5 kilo with a price of 2.15 million dollars. Zolgensma is designed to replace the missing or defective SMN1 gene with a functional copy that produces the SMN protein, thereby improving the function and survival of motor neurons. It seems that Zolgensma can save lives of those who are lucky enough to get it with a single dose treatment. Today Mustafa Yagiz can't stand or walk and without support of hardware is not able to breath. Unfortunately, he doesn't have a second to lose. We need the support of volunteers who can help him during this fight and donate motor neurons for this breaveheart. We hope that Mustafa Yagiz is one of the lucky patients receiving this treatment.

PS:  Your donations will be transferred directly to the hospital for treatment

ASYA Hilfsorganisation e.V.
Wickenweg 1, 73730 Esslingen am Neckar