Bentley’s Sagittal Craniosynotosis

Hello today Bentley been diagnosed with Sagittal Synostosis. We will have to make quite a few appointments down in San Francisco children hospital..

Craniosynostosis is a birth defect in which the bones in a baby's skull join together too early. This happens before the baby's brain is fully formed. As the baby's brain grows the skull can become more misshapen.

If left untreated, craniosynostosis can lead to serious complications, including: Head deformity, seizures and increased pressure on the brain.

surgery is needed to prevent any future complications. The surgery involves removing a strip of the skull to help increase the amount of room for the brain to grow, improve the skull shape, and reduce the risk of the sagittal suture closing again. The surgery will be closely monitored by; craniofacial (skull and face) surgeons, neuro (brain) surgeons, ophthalmologists (eye specialists), geneticists and speech and language therapists with other specialists brought in as needed. This surgery can take up to 5 hours possibly more… Bentley and I (mother) will be stuck at the San Francisco children hospital after surgery for 5 days if all goes well.

Due to one only income we need all the help we can get to make to his doctors before his surgery, post ops and everything in between