Bill Hahn Cancer Fund
Donation protected
Personal Testimony, Prayer, Organ Donor Tribute, Music Video. Shared at the Library of Congress.
MY TRUE LIFE STORY !
( diabetes, kidney failure and cancer. )
... My 3rd New Normal : 2016
Last week I was diagnosed with Lynch syndrome and Muir-Torre syndrome. My 3rd new normal. A rare aggressive genetic cancer syndrome that predominately affects the colon and the gastrointestinal tract but can also produce sebaceous carcinoma cancers and other types of skin tumors. In addition, it can attack the eyelids with lesions that can invade the orbits of the eyes and frequently metastasize, leading to death.
I will undergo Mohs surgery which is a micrographic procedure on my left cheek that progressively removes thin layers of the cancer-containing skin until only the cancer-free skin remains on August 2nd. I will have to live with this condition for the rest of my life. There is no cure. Surgery is the recommended treatment.That being said, the anti-rejection medications I must remain on the rest of my life, after receiving my life-saving kidney and pancreas transplant on New Years Day of 2009, puts me at an even higher risk for even more cancers which I have already battled and overcome. The medications, constant monitoring and surgeries I have survived so far have made me a warrior. I have never been one to ask for a hand-out our moan about my life so I ask you for only a hand-up. I consider my life blessed but the financial implications of my trials have become overwhelming. I have become wise in the battle and have been delivered in the fight. I have facedown every physical, emotional or mental challenge set before me with conviction as you will see. Why do I refer to this as my third new normal. Please witness just what Gods plan is for me. His plan is not one of self-pity but a vision of triumphs over trials, faith over fear and mercy delivered by His hands.
... My 1st New Normal : 1982
My first new normal began when I was twenty six years old. Diabetes. I was an avid runne, a professional surfer and a sports nut in short, I was in great shape, not the typical lifestyle for someone to be diagnosed with type 1 diabetes. At twenty six I am what would be considered late bloomer for this deadly disease. With the Lords guidance and my loving parents I did the best I could do in order to conqueror my life threatening new normal. In this episode my journey I was delivered from total, blindness, coma, multiple seizures and cancer. I was forced to quit my pro-surfing career, which saddens me till, this day, but I found other ventures to give me strength and purpose.
I continued running sometimes up to twenty miles a day, started my marketing career, I began writing and found joy in photography fell in love and was married.
... My 2nd New Normal : 2008
Twenty six years later and now divorced I had kidney failure at the age of fifty two and was put on dialysis. I thought I hand played the hand I had been dealt well but my new normal now its second new normal. Kidney Failure. I began dialysis which was not my death sentence nor did I ever believe it would be. Being a positive and highly motivated person I continued running twenty miles a day while on dialysis which physically and mentally prepared me for the seemingly endless hours I was to spend on dialysis. I guess you could say I had developed a marathon mentality. I educated myself on the protocol and the compliancy of dialysis and followed my doctors guidance to the letter. I was once again blessed when I received my first call, we have a match, for a double organ transplant after being on dialysis for only nine months. I said no. Something inside me made me flinch. It was the realization that because I needed both a kidney and a pancreas someone had to die. I asked God how could I possible receive such a gift from someone who had passed and was someone I didn't even know ? Gods message to me was clear. He had a individual mission and purpose for everyone.
On New Years Eve of 2008 I once again received, the call. On New Years day of 2009 I was born again. Both in body and in soul. Since then I have gone through my share of rejection episodes in the last seven years but I have found my mission and purpose in God and in becoming an advocate for chronic kidney disease and organ donation. My parents, my friend Rich Salick and I founded the NKFF Cocoa Beach Footprints in the Sand Kidney Walk in 2012. To date it has raised over 200K for fellow patients but more importantly it has raised the hopes and dreams of thousands of CKD patients. My music video, This Feeling I Feel Inside is ... You was created as a tribute to organ donors and was shared at the Library of Congress for Organ Donation in 2011. I have written and published several books as a way to cope with these challenges and tributes and inspirational testimony about the power of love, the mercy of God and the angels who have given the gift of life. These books are my gift to you with a donation of $125.00 towards my GoFumdMe campaign. They contain the people, poetry, pictures, stories and videos of the lives who have touched mine and the passion that has been instilled in me for what others face and will face in their own gift of life journey as a recipients, donors and donor families. We are one.
To my fellow warriors. I hope that these heartfelt gifts, The Silver Lining and More Than a Conqueror will serve as a front-line-guide and inspire you who face chronic illness and life-threatening disease.
Daily prayers ; daily praise ; daily blessings !
Bill Hahn
Be my Guide Video Prayer.
(excerpt from my book ; The Silver Lining )
https://www.youtube.com/watch?v=3_YpcgRz7Homy
Don't make this life easy ... Lord
make me stronger
I will serve Your strength with my need
I won't give up ... Lord
I will try harder
That's what you made in me
The mountain is steep ... Lord
I will reach higher
With You here by my side
The lesson's You preach ... Lord
They do inspire
Your words will be my guide.
NKFF Cocoa Beacch Footprints in the Sand video.
https://www.youtube.com/watch?v=01zr9xbktMs
The NKFF Cocoa Beach Footprints in the Sand Kidney Walk takes place every mother's day. WE have raised over 200k since its inception in 2012 for chronically ill patients. But more than that we have raised the hope and dreams for thousands in all parts of the gift of life journey. Many transplant recipients are a high risk for cancer due to their anti-rejections medications. On the golden shores of Cocoa Beach Florida donor families, living donors and recipients walk on a beach of life and eternal life. We are warriors we are one. Walk the walk, make you mark and save a life.
Gift with Donation ; both books w/ $125 donation.
The Silver Lining
for Mom ; I wrote this book after my life-saving kidney and pancreas on New Years Day of 2009. She was my angel. She passed away suddenly in the midst of the writing this book. She read and proofed it never knowing it was for her. She was an artist of life and in life. She painted in charcoal's, pastels and oils. After she passed I decided to honor her by including her artwork within its pages. I wrote poetry to each. I guess you could say as were published together . Sharing thoughts and words through eternity.
More Than a Conqueror
for Organ Donors ; The Gift of Life through organ, tissue and eye donation. As written in John (15:13) is the greatest love one can give : to give one's life for one's friends. A verse so true in organ donation as well as chronic illness and the mission of living a blessed life. This book represents the spiritual re-awakening of one recipients journey and the amazing blessings found in each step. The most amazing of which is the common bond between donor families and recipient's. The love that is shared between them in the journey of life on earth and eternal life in heaven. Amen.
MY TRUE LIFE STORY !
( diabetes, kidney failure and cancer. )
... My 3rd New Normal : 2016
Last week I was diagnosed with Lynch syndrome and Muir-Torre syndrome. My 3rd new normal. A rare aggressive genetic cancer syndrome that predominately affects the colon and the gastrointestinal tract but can also produce sebaceous carcinoma cancers and other types of skin tumors. In addition, it can attack the eyelids with lesions that can invade the orbits of the eyes and frequently metastasize, leading to death.
I will undergo Mohs surgery which is a micrographic procedure on my left cheek that progressively removes thin layers of the cancer-containing skin until only the cancer-free skin remains on August 2nd. I will have to live with this condition for the rest of my life. There is no cure. Surgery is the recommended treatment.That being said, the anti-rejection medications I must remain on the rest of my life, after receiving my life-saving kidney and pancreas transplant on New Years Day of 2009, puts me at an even higher risk for even more cancers which I have already battled and overcome. The medications, constant monitoring and surgeries I have survived so far have made me a warrior. I have never been one to ask for a hand-out our moan about my life so I ask you for only a hand-up. I consider my life blessed but the financial implications of my trials have become overwhelming. I have become wise in the battle and have been delivered in the fight. I have facedown every physical, emotional or mental challenge set before me with conviction as you will see. Why do I refer to this as my third new normal. Please witness just what Gods plan is for me. His plan is not one of self-pity but a vision of triumphs over trials, faith over fear and mercy delivered by His hands.
... My 1st New Normal : 1982
My first new normal began when I was twenty six years old. Diabetes. I was an avid runne, a professional surfer and a sports nut in short, I was in great shape, not the typical lifestyle for someone to be diagnosed with type 1 diabetes. At twenty six I am what would be considered late bloomer for this deadly disease. With the Lords guidance and my loving parents I did the best I could do in order to conqueror my life threatening new normal. In this episode my journey I was delivered from total, blindness, coma, multiple seizures and cancer. I was forced to quit my pro-surfing career, which saddens me till, this day, but I found other ventures to give me strength and purpose.
I continued running sometimes up to twenty miles a day, started my marketing career, I began writing and found joy in photography fell in love and was married.
... My 2nd New Normal : 2008
Twenty six years later and now divorced I had kidney failure at the age of fifty two and was put on dialysis. I thought I hand played the hand I had been dealt well but my new normal now its second new normal. Kidney Failure. I began dialysis which was not my death sentence nor did I ever believe it would be. Being a positive and highly motivated person I continued running twenty miles a day while on dialysis which physically and mentally prepared me for the seemingly endless hours I was to spend on dialysis. I guess you could say I had developed a marathon mentality. I educated myself on the protocol and the compliancy of dialysis and followed my doctors guidance to the letter. I was once again blessed when I received my first call, we have a match, for a double organ transplant after being on dialysis for only nine months. I said no. Something inside me made me flinch. It was the realization that because I needed both a kidney and a pancreas someone had to die. I asked God how could I possible receive such a gift from someone who had passed and was someone I didn't even know ? Gods message to me was clear. He had a individual mission and purpose for everyone.
On New Years Eve of 2008 I once again received, the call. On New Years day of 2009 I was born again. Both in body and in soul. Since then I have gone through my share of rejection episodes in the last seven years but I have found my mission and purpose in God and in becoming an advocate for chronic kidney disease and organ donation. My parents, my friend Rich Salick and I founded the NKFF Cocoa Beach Footprints in the Sand Kidney Walk in 2012. To date it has raised over 200K for fellow patients but more importantly it has raised the hopes and dreams of thousands of CKD patients. My music video, This Feeling I Feel Inside is ... You was created as a tribute to organ donors and was shared at the Library of Congress for Organ Donation in 2011. I have written and published several books as a way to cope with these challenges and tributes and inspirational testimony about the power of love, the mercy of God and the angels who have given the gift of life. These books are my gift to you with a donation of $125.00 towards my GoFumdMe campaign. They contain the people, poetry, pictures, stories and videos of the lives who have touched mine and the passion that has been instilled in me for what others face and will face in their own gift of life journey as a recipients, donors and donor families. We are one.
To my fellow warriors. I hope that these heartfelt gifts, The Silver Lining and More Than a Conqueror will serve as a front-line-guide and inspire you who face chronic illness and life-threatening disease.
Daily prayers ; daily praise ; daily blessings !
Bill Hahn
Be my Guide Video Prayer.
(excerpt from my book ; The Silver Lining )
https://www.youtube.com/watch?v=3_YpcgRz7Homy Don't make this life easy ... Lord
make me stronger
I will serve Your strength with my need
I won't give up ... Lord
I will try harder
That's what you made in me
The mountain is steep ... Lord
I will reach higher
With You here by my side
The lesson's You preach ... Lord
They do inspire
Your words will be my guide.
NKFF Cocoa Beacch Footprints in the Sand video.
https://www.youtube.com/watch?v=01zr9xbktMsThe NKFF Cocoa Beach Footprints in the Sand Kidney Walk takes place every mother's day. WE have raised over 200k since its inception in 2012 for chronically ill patients. But more than that we have raised the hope and dreams for thousands in all parts of the gift of life journey. Many transplant recipients are a high risk for cancer due to their anti-rejections medications. On the golden shores of Cocoa Beach Florida donor families, living donors and recipients walk on a beach of life and eternal life. We are warriors we are one. Walk the walk, make you mark and save a life.
Gift with Donation ; both books w/ $125 donation.
The Silver Lining
for Mom ; I wrote this book after my life-saving kidney and pancreas on New Years Day of 2009. She was my angel. She passed away suddenly in the midst of the writing this book. She read and proofed it never knowing it was for her. She was an artist of life and in life. She painted in charcoal's, pastels and oils. After she passed I decided to honor her by including her artwork within its pages. I wrote poetry to each. I guess you could say as were published together . Sharing thoughts and words through eternity.
More Than a Conqueror
for Organ Donors ; The Gift of Life through organ, tissue and eye donation. As written in John (15:13) is the greatest love one can give : to give one's life for one's friends. A verse so true in organ donation as well as chronic illness and the mission of living a blessed life. This book represents the spiritual re-awakening of one recipients journey and the amazing blessings found in each step. The most amazing of which is the common bond between donor families and recipient's. The love that is shared between them in the journey of life on earth and eternal life in heaven. Amen.
Organizer
Bill Hahn
Organizer
Rockledge, FL