Billie's SOT Treatment for Chronic Lyme Disease

Hello Everyone. I've reached a place in my health where I've become significantly more physically and cognitively disabled. Because of this, I've lost a considerable amount of function and the ability to support myself fully. I need to try something new and more targeted in order to gain back more quality and function in my life and I NEED YOUR HELP TO DO IT!

I know I've not spoken to most of you in quite some time so I wanted to provide a little update. Life has really dealt me a very difficult past year and half. The most difficult stretch of my life by far. In April 2022, Ronnie and I decided to separate and move from IL back to CO. We got back to CO and in August I had major jaw surgery due to infection in my jaw bone and root canal.

I had barely recovered from that and then I got West Nile Virus that triggered viral meningitis at the end of August 2022. The acute illness took a couple months to recover from but after that I was still left with extreme brain and nervous system inflammation that made it difficult to work, difficult to think, and difficult to move and function.

I was having multiple migraines each week, vision loss, tremor, muscle weakness and imbalance, severe pain, difficult with cognition and focus, worsening depression and anxiety, extreme fatigue and exhaustion with zero mental and physical stamina. I did IV ozone and some natural ant-viral and anti-inflammatory treatments, by around May of 2023, I felt like my long haul symptoms were finally reduced by 50% or so and I was finding some more function coming back. BUT then I got a second west nile virus infection in July of this year that also triggered viral meningitis and a worsening of my symptoms again, reducing my ability to function on a daily basis.

I also had many huge personal stressors the past year that have played a role in my current state of health. Some of you know that I lost my best friend, Tiffany on 12/27/2022, she died from chronic lyme disease and this loss has been incredibly difficult for me to grieve and navigate.

Then on 5/22/2023, my dad passed away suddenly and somewhat unexpectedly leaving me with another huge loss and hole in my heart that cannot be filled. During this same time frame, Ronnie and I made the decision to get divorced after spending several months in couples therapy.

I've been working very hard to overcome all of these physical and emotional health challenges but I still find myself in the worst state of physical health I've been in over 10 years. Even with lots of natural and pharmaceutical treatments on board, my infection load remains high, my immune system isn't able to keep up and my symptoms and disease states are progressing.

I've been diagnosed with Ehlers Danlos Syndrome, a connective tissue disease that creates joint hyper-mobility - for me this means my neck, ribs, hips, and knees pop out of place often and easily and create daily pain and dysfunction. It's also created two hernias in my abdomen and groin.

I've developed chronic pericarditis, inflammation in the lining around my heart, chronic inflammation in my kidneys, and interstitial cystitis in my bladder as a result from west nile virus. I also have a pituitary disorder that is creating significant weakness and fatigue as well as extreme weight loss. I also developed alopecia and have lost 2/3 of my hair.

West nile virus and the grief and trauma have significantly weakened my immune system and because of this, several of my tick borne infections and chronic viral infections have reactivated including babesia, a malarial-like infection which is highly debilitating.

All of this is too much for my immune system to manage and conventional treatments are not helping enough. In fact, many of the treatments are contributing to organ dysfunction and disease states so I need to come off of them as they are not long term solutions. Most days are a struggle for me as the symptoms are wide spread and debilitating.

So, I’ve been consulting with a new Lyme doctor in CA, Dr. Lisa Hunt, who specializes in chronic Lyme and uses a type of treatment called Supportive Oligonucleotide Therapy (SOT). This treatment has been showing very good results at putting lyme and other chronic infections into remission. SOT therapy is designed specifically to target individual bacterial or viral strains, so it is highly accurate and effective.

Here is how it works:

RGCC Laboratory located in Greece is a genetic laboratory which is capable of identifying the specific gene sequences of different targets such as cancer, Lyme, and other viruses. My blood would be sent to their lab, and they identify the main genetic sequence (gene epitope) of my target infections.

RGCC created this unique fingerprinting technology so that we can ensure the success of this treatment. It creates a 98% specificity to our target pathogens such as the Lyme spirochetes, babesia, and many viruses and it does not interfere with any other human cells.

Once they create the complimentary copy of the replication sequences, they surround this copy with a synthetic messenger RNA so that it has the ability to penetrate within the cell wall of our target. Once this mRNA sequence is created, they replicate this to 500 million to 1 billion copies of my unique SOT molecules. These molecules are delivered back to my doctor's office in CA where I would travel to receive the treatment via IV infusion.

Once the SOT molecules are in my body, they are at work 24 hours a day, seven days a week for up to six months inhibiting the replication cycle of the targeted infections. The Lyme spirochetes have a life cycle of 80 days. SOT works simply by shutting down the gene replication sequences of our target infections, therefore, eliminating the next lifecycle which helps achieve a remission of the infection. This type of accuracy and precision isn't available with any other treatment.

Each SOT treats only 1 infection and my current testing shows I have at least 10 active infections. My treatment plan would be to do 6 SOT treatments over the next 6-9 months. My doctors think this will take a huge stress off the immune system and give me a fighting chance to gain back more quality of life. This treatment has had exceptionally good results, but as you can imagine, it comes with a high price tag and is not covered by my insurance.

My current monthly medical out of pocket costs are already around $2,500 which I can cover but I cannot cover all that is needed for the SOT on top of my regular expenses, which is why I’m asking for your help.

I've outlined the costs below that would cover the next 6-9 months of treatment, a total of 6 SOT infusions.

Medical Devices (I use both of these everyday for multiple hours to get relief and support function)

Diagnostic Testing (needed for accuracy and measurement of success of SOT) - $5,500

Physician Fees - $3,000

SOT - $4,000 each (x 6 treatments) = $24,000

Travel Expenses (to CA for SOT) - $1,500 (x 6 treatments) = $9,000

Supportive Therapies (pre & post SOT treatment)* - $2,000 (x 6 treatments) = $12,000

*These are therapies that improve the success and tolerance of the SOT treatments*

Total for 6 SOT treatments including all ancillary expenses = $59,900

I'm very strong and very stubborn and not done fighting! I still have lots to give to others in this world and am more dedicated than ever to my practice and helping others who are suffering from chronic illness.

I have so more life to live, love, laugh, and experience. I deeply appreciate any support that you can provide to help me meet my goals. Much love. Billie