Blossoms fight against infantile spasms

Hi, my name is Darcy Fletcher and I’m fundraising for my beautiful daughter who is suffering daily from infantile spasms. Blossom was born on the 30th June 2022 and everything was so perfect. We went home to start our perfect life as a family however when Blossom was around 3 months old we started noticing unusual movements where her arms would shoot up and her eyes would roll which looked like a seizure. These movements were becoming more frequent and we were becoming worried, we took Blossom to the doctors as we thought this was unusual for a baby. We were sent home and told this is “normal” and they put it down to nystagmus. After a few days passed blossom was starting to do this movement around 50/60 times a day and we were unhappy so we rushed her straight to Royal Bolton Hospital and we were kept in for lots of tests, eeg, brain scans you name it. To be told daughter has brain damage and they say they don’t know what’s caused this. I was induced with blossom however she became stressed and ended up being born by emergency caesarean, she was born not breathing for a couple of seconds and was starved of oxygen. We were sent home the next day we really do believe this is what has caused this horrible condition.

After we received results from the tests we were told she has a rare form of epilepsy known as infantile spasms. You can imagine as first time parents how horrible this news was to receive our worlds were totally shattered. Blossom is still having up to 60 seizures a day, she is visually impaired and is delayed in her development. We have tried numerous different medications for Blossom however nothing seems to be working. We have taken Blossom into the hospital multiple times as we have been concerned she’s still having lots of seizures despite being on medication and they send us home straight away with no concern. They take months to get back to us when we have questions or express our concerns and unfortunately we do not have time on our hands as each seizure our daughter is having is effecting her brain more and more. We want to raise this money to get Blossom private treatment and find the right medication to help our precious girl help her lead the normal life she deserves.

Any help is hugely appreciated this battle is ongoing every single day and all we want is to help our girl the best we can ❤️ Thank you.