The Campbells' Campaign of Courage
Donation protected
This is the story of Baby Campbell. He doesn't have a voice of his own yet, so we're going to do our best to be a voice for him.
The story begins in November 2018. During this month, Julianna chose her and Tyler's wedding anniversary to share the joyful news that they were expecting their 2nd baby. The holiday season was full of joy and anticipation as they shared with their family they were now a family of 4!!
Braxton was so excited to share with everyone that he is going to be a BIG BROTHER!
On February 12, 2019 Julianna went in for her anatomy ultrasound and was told Baby Campbell looked like he had a heart defect & enlarged kidneys. She was sent for some further testing.
On February 22, 2019 Julianna & Tyler found out that Baby Campbell was blessed with an extra chromosome and was going to be born with Down Syndrome. While this was unexpected news, they took it as an opportunity to advocate for Baby Campbell and educate their families and friends on the potential challenges to come.
Over the next couple months Julianna & Tyler had OB visits as usual and met with a Maternal-Fetal Medicine doctor (MFM), a pediatric cardiologist, & a pediatric cardiothoracic surgeon. There were a lot of appointments to go to, but the biggest hurdle was learning about the open heart surgery that he would need between 3-6 months of age to correct his defect.
On April 12, things took a turn and doctors discovered bilateral pleural effusions (fluid outside both his lungs) on his routine echocardiogram with the cardiologist. Julianna was sent to her MFM for a follow-up ultrasound to check Baby Campbell thoroughly. It was determined that he only had fluid on his lungs, but this increased Julianna's doctors appointments to twice a week so they could watch him carefully.
On April 18, things took another turn as Baby Campbell now had ascites (fluid in his abdomen). On April 22 & 23 Julianna's MFM gave her steroids in case Baby Campbell needed to be delivered.
On April 24, they transferred care to the University of Kentucky due to Baby Campbell's critical condition. Julianna and Tyler met with multiple MFMs, Neonatal Intensive Care Staff, Pediatric Intensive Care Staff, and the Palliative Care Team. The MFM at UK diagnosed Baby Campbell with Chylothorax, but also said it couldn't be definitively tested until after birth.
After a couple weeks, the doctors still didn't know what was causing Baby Campbell to keep getting sicker. On May 8 Julianna's original MFM told her that Baby Campbell's condition had worsened and told her if you weren't going to Cincinnati I'd admit you in Lexington. They sought a third opinion at Cincinnati Children's on May 9. This day brought good news and bad news. The good news was that the doctors had a pretty clear picture of what was going on with Baby Campbell. The bad news was that they believed he had a condition called Hydrops Fetalis, which basically means he has fluid surrounding multiple organs. They have given Baby Campbell a 50/50 chance of survival if he makes it through delivery. The Neonatologist met with Julianna & Tyler and re-iterated to them that Baby Campbell could have a very difficult resuscitation period after delivery. Due to these circumstances, Julianna & Tyler have had some very difficult conversations that no parent should ever have to have.
On May 9, Julianna was admitted to Good Samaritan in Cincinnati for possible Mirror Syndrome (when the mother's body begins to show the same symptoms that the baby has). Julianna has received two more rounds of steroids and they are probably going to do a c-section this week. Before delivery, the MFM is going to drain as much fluid as she can from around Baby Campbell's lungs and abdomen to hopefully give him a better chance to breathe on his own when the time comes.
Baby Campbell's journey is not over. We lost our first daughter, Madeline, in October of 2016. We speak from experience in saying that this family is going through something that no family should ever have to experience. Their world is turned upside down and every day is a struggle between hope & fear. We cannot change the circumstances that life has given to the Campbells, but we can help them continue to be courageous. This is where we ask for your help. Every dollar you donate will go directly to the Campbells' hospital bills &/or after birth care for Baby Campbell. We urge you to support the Campbells' Campaign for Courage in any way you can! You can check back here for updates on Julianna and Baby Campbell. Thank you!!
The story begins in November 2018. During this month, Julianna chose her and Tyler's wedding anniversary to share the joyful news that they were expecting their 2nd baby. The holiday season was full of joy and anticipation as they shared with their family they were now a family of 4!!
Braxton was so excited to share with everyone that he is going to be a BIG BROTHER!
On February 12, 2019 Julianna went in for her anatomy ultrasound and was told Baby Campbell looked like he had a heart defect & enlarged kidneys. She was sent for some further testing.
On February 22, 2019 Julianna & Tyler found out that Baby Campbell was blessed with an extra chromosome and was going to be born with Down Syndrome. While this was unexpected news, they took it as an opportunity to advocate for Baby Campbell and educate their families and friends on the potential challenges to come.
Over the next couple months Julianna & Tyler had OB visits as usual and met with a Maternal-Fetal Medicine doctor (MFM), a pediatric cardiologist, & a pediatric cardiothoracic surgeon. There were a lot of appointments to go to, but the biggest hurdle was learning about the open heart surgery that he would need between 3-6 months of age to correct his defect.
On April 12, things took a turn and doctors discovered bilateral pleural effusions (fluid outside both his lungs) on his routine echocardiogram with the cardiologist. Julianna was sent to her MFM for a follow-up ultrasound to check Baby Campbell thoroughly. It was determined that he only had fluid on his lungs, but this increased Julianna's doctors appointments to twice a week so they could watch him carefully.
On April 18, things took another turn as Baby Campbell now had ascites (fluid in his abdomen). On April 22 & 23 Julianna's MFM gave her steroids in case Baby Campbell needed to be delivered.
On April 24, they transferred care to the University of Kentucky due to Baby Campbell's critical condition. Julianna and Tyler met with multiple MFMs, Neonatal Intensive Care Staff, Pediatric Intensive Care Staff, and the Palliative Care Team. The MFM at UK diagnosed Baby Campbell with Chylothorax, but also said it couldn't be definitively tested until after birth.
After a couple weeks, the doctors still didn't know what was causing Baby Campbell to keep getting sicker. On May 8 Julianna's original MFM told her that Baby Campbell's condition had worsened and told her if you weren't going to Cincinnati I'd admit you in Lexington. They sought a third opinion at Cincinnati Children's on May 9. This day brought good news and bad news. The good news was that the doctors had a pretty clear picture of what was going on with Baby Campbell. The bad news was that they believed he had a condition called Hydrops Fetalis, which basically means he has fluid surrounding multiple organs. They have given Baby Campbell a 50/50 chance of survival if he makes it through delivery. The Neonatologist met with Julianna & Tyler and re-iterated to them that Baby Campbell could have a very difficult resuscitation period after delivery. Due to these circumstances, Julianna & Tyler have had some very difficult conversations that no parent should ever have to have.
On May 9, Julianna was admitted to Good Samaritan in Cincinnati for possible Mirror Syndrome (when the mother's body begins to show the same symptoms that the baby has). Julianna has received two more rounds of steroids and they are probably going to do a c-section this week. Before delivery, the MFM is going to drain as much fluid as she can from around Baby Campbell's lungs and abdomen to hopefully give him a better chance to breathe on his own when the time comes.
Baby Campbell's journey is not over. We lost our first daughter, Madeline, in October of 2016. We speak from experience in saying that this family is going through something that no family should ever have to experience. Their world is turned upside down and every day is a struggle between hope & fear. We cannot change the circumstances that life has given to the Campbells, but we can help them continue to be courageous. This is where we ask for your help. Every dollar you donate will go directly to the Campbells' hospital bills &/or after birth care for Baby Campbell. We urge you to support the Campbells' Campaign for Courage in any way you can! You can check back here for updates on Julianna and Baby Campbell. Thank you!!
Organizer and beneficiary
Kaitlin Rogers
Organizer
Jacksonville, FL
Julianna Campbell
Beneficiary