Bobbi Bewley's Wish ❤️
Donation protected
Hi, my name is Caeleigh and I'm fund raising for a very good friend of mine, Jodie and her family. The Main aim is to raise funds to support the family and give Bobbi some amazing memories. Bobbi was diagnosed with type 1 diabetes some time ago, after she started having issues with her eye sight she has under gone much testing and has now been diagnosed with an extremely rare condition, Wolfram syndrome.
Please donate whatever you can, as every little will help.
Please see below for information on Wolfram syndrome.
Wolfram Syndrome, also called DIDMOAD (Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness), is a rare genetic disorder, causing the four conditions that make up the name, as well as various other possible symptoms.
Bobbi may go blind, deaf, have swallowing and breathing difficulties and this cruel illness may take her life by the age of 30.
There is currently no treatment for Wolfram syndrome. Bobbi has already lost some vision and struggles daily from diabetes and aches and pains caused from the condition.
Caring for Bobbi has had a massive impact on the family. Bobbi's mum can no longer work and Bobbi's dad has needed to take time off work to support the family during this difficult time.
Currently there isn't a treatment for this cruel illness. The family want to make as many happy memories with Bobbi.
Thank you.
Fundraising team (2)
caeleigh Adams
Organizer
Jodie Bewley
Team member