Bobbi Jo Dillon - Our Little Angel
Donation protected
Bobbi-Jo Dillon is our little Angel with a broken wing and we are asking for the spirit of our community to help her infectious smile last a lifetime.
Bobbi- Jo was born with Rett Syndrome and is soon to have a major operation of spinal fusion this coming July to fix the 82 degree curvature. Unfortunately there is no cure for Rett Syndrome or for our Bobbi-Jo but through this campaign we hope to raise much needed funds to keep her smiling and to raise awareness throughout the community as to this rare and often overlooked condition.
Rett syndrome is a rare non-inherited neurological and developmental disorder thatoccurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child's life - their ability to speak, walk, eat, and even breathe easily.
Rett syndrome has little to no support from the government and the $100 a fortnight for carer's allowance is barely enough to cater for Bobbi-Jo's constant needs - from everyday living to medication and feeding tubes.
I have been lucky enough to be a part of the Elite Agent Magazine - Super Six. Bobbi-Jo is dear to my heart but I am personally only allowed to donate $20 as a Random Act of Kindness. Please feel free to donate as little or as much as possible for this wonderful girl. Please utilise your social media networks to ensure we all get behind this cause.
Remember, it could have just as easily been our own in the same position.
Bobbi- Jo was born with Rett Syndrome and is soon to have a major operation of spinal fusion this coming July to fix the 82 degree curvature. Unfortunately there is no cure for Rett Syndrome or for our Bobbi-Jo but through this campaign we hope to raise much needed funds to keep her smiling and to raise awareness throughout the community as to this rare and often overlooked condition.
Rett syndrome is a rare non-inherited neurological and developmental disorder thatoccurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child's life - their ability to speak, walk, eat, and even breathe easily.
Rett syndrome has little to no support from the government and the $100 a fortnight for carer's allowance is barely enough to cater for Bobbi-Jo's constant needs - from everyday living to medication and feeding tubes.
I have been lucky enough to be a part of the Elite Agent Magazine - Super Six. Bobbi-Jo is dear to my heart but I am personally only allowed to donate $20 as a Random Act of Kindness. Please feel free to donate as little or as much as possible for this wonderful girl. Please utilise your social media networks to ensure we all get behind this cause.
Remember, it could have just as easily been our own in the same position.
Organizer
Darin Butcher
Organizer
Lake Haven, NSW