Surgery Fund for Tumor (Clivus Chordoma)
Donation protected
Hi, I rarely share personal info, and it is tough for me to accept help from others. I'm not a prideful person; just hard for me to ask for/take charity when others have it worse.
Six weeks ago, I woke up with double vision. I've had a constant headache for 4 weeks. The pain meds are not always effective. It took two trips to an opthalmologist, 1 to my PCP, a CT scan, an MRI and ENT visit and finally a neurosurgeon to get an answer. Diagnosed with a Clivus Chordoma. It is now about the size of a walnut.
It's going to be another month before I can get into surgery and 2 to 8 weeks (or longer), depending on the difficulty of the surgery.
It is possible for a spinal fusion because the Chordoma has replaced the Clivus bone.
I could be under anesthesia for two days, 3-5 days in a hospital, then another ten days or so in a recovery ward.
I drive for a living, and if they have to do a particular type of spinal fusion, I will lose lateral and up and down motion in my neck...
Then radiation therapy (narrow proton beam) afterward to take care of any part of the tumor they could not remove initially.
There's always the possibility of more nerve damage, stroke, loss of movement, and continued headaches...
The funds will be used to cover lost wages, meds, deductibles and anything else until I can get back to work.
Please help if you can...
If you need any more info, feel free to message me.
Thank You,
Ted
Organizer
Ted Jones
Organizer
Comstock Park, MI