Braxxton's Funeral Expenses

Braxxton Nicolas Kye Robertson, October 5, 2016 - February 3, 2021

Braxxton was born with Walker Warburg Syndrome (more below).  His Mom, Nikki, knew that there were issues with her baby while she was pregnant.  We prayed him through several hurdles before he was born, and God brought Nikki a beautiful child. He had several health issues - hydrocephalus, vision  impairment, muscle weakness, and other developmental difficulties. It was awhile before he was formally diagnosed. Nikki loved Braxxton fiercely and grew to become his knowledgeable advocate and caregiver, giving him the best possible life. He rewarded her with joyful smiles and giggles. His older brother, Bryce, could really make him laugh.  The outlook for babies with this genetic disorder is on the order of months, most babies not living past three years. Braxxton was here with us for four years. He died peacefully in his sleep February 3, 2021.

Braxxton required twenty-four hour care. Nikki was a stay-at-home Mom, because of his needs. Her family was dependent upon child support and Social Security Disability, which Nikki recently supplemented with a part time job.

The funds raised will go directly to Nikki to help defray the costs of funeral expenses. Your help is greatly appreciated!

Walker Warburg Syndrome

. . . is an inherited disorder that affects development of the muscles, brain, and eyes. It is the most severe of a group of genetic conditions known as congenital muscular dystrophies, which cause muscle weakness and wasting (atrophy) beginning very early in life.