Briggs Alden Hasty

As some of you know, my grandson, Briggs Alden Hasty, has recently been diagnosed with FOXG1 syndrome. For those who aren’t familiar with what this is, my daughter said it well, “It’s one of those super rare genetic disorders- in fact only about 500 diagnoses are known world wide”. With this diagnoses comes seizures, delayed development, some kids can’t walk, talk or eat.

Can you imagine? My momma heart aches.

The past couple of months have been challenging. They’ve been in and out of the hospital with Briggs. He started having seizures last month, was placed on medications and bc a “breakthrough”. Landed back in the hospital, meds changed, new info gained and sent home with hopes of being seizure free atleast for a while. While he’s remained seizure free, he landed back at CHOA yesterday and received a g-tube this morning. Briggs has been working with speech and they found he was silently aspirating and finally he started refusing to take anything by mouth. Including his meds he needs to remain seizure free. This is a huge decision. Not made lightly. But the best for Briggs and his mom and dad. No more worries as to if he’s eating enough or getting his meds. Now with hopes to continue to work on taking things by mouth, and having an alternative solution for when he refuses anything by mouth.

i am putting together a GoFundme to help Taylor and her family with medical bills, medicines and any equipment Briggs may need in the future.

Any and All donations are sincerely appreciated.

Psalm 139:14

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.

Briggs, you are fiercely loved!