Brittani's Heart Lung Transplant Fundraiser
Donation protected
This is my sister Brittani.
She was born with 5 congenital heart defects and 2 congenital lung defects. Which lead her to needing life saving open heart surgery at less than a day old at Children’s Memorial Hospital.
She’s had 4 open heart surgeries total and many other cardio procedures at both Children’s (now Lurie Children’s) and Northwestern in Chicago. The last few years she started to decline to a point when a transplant surgery became a serious conversation. The past few months she’s undergone extensive testing to see if she was in the window to be listed for heart/bilateral lung transplant. And to make sure everything else was as healthy as possible to move forward. Northwestern and Children’s didn’t have a team that has done heart/lung transplant together, but in May that all changed. They would have meetings about her case and knew she was comfortable in being the 1st one because she’d already been a 1st during her 3rd open heart surgery, that was a specific and new procedure that’s now a “standard” for pulmonary vein stenosis. One of the 5 congenital heart defects she was born with.
After all the tests, going through a heart cath, drs appointments, meeting with transplant surgeons, going through transplant education... I’m happy to say she’s now listed for heart/bilateral lung transplant. This fundraiser will allow us a better peace of mind since our Mom will have to take FMLA with her job as a paraprofessional in the local school district within the Special Education program. Brittani will need 24/7 care after transplant for at least several months and expenses will need to be covered during that time. Please consider in supporting Brittani and also sharing this page with your friends and family. Every little bit counts and is greatly appreciated.
She was born with 5 congenital heart defects and 2 congenital lung defects. Which lead her to needing life saving open heart surgery at less than a day old at Children’s Memorial Hospital.
She’s had 4 open heart surgeries total and many other cardio procedures at both Children’s (now Lurie Children’s) and Northwestern in Chicago. The last few years she started to decline to a point when a transplant surgery became a serious conversation. The past few months she’s undergone extensive testing to see if she was in the window to be listed for heart/bilateral lung transplant. And to make sure everything else was as healthy as possible to move forward. Northwestern and Children’s didn’t have a team that has done heart/lung transplant together, but in May that all changed. They would have meetings about her case and knew she was comfortable in being the 1st one because she’d already been a 1st during her 3rd open heart surgery, that was a specific and new procedure that’s now a “standard” for pulmonary vein stenosis. One of the 5 congenital heart defects she was born with.
After all the tests, going through a heart cath, drs appointments, meeting with transplant surgeons, going through transplant education... I’m happy to say she’s now listed for heart/bilateral lung transplant. This fundraiser will allow us a better peace of mind since our Mom will have to take FMLA with her job as a paraprofessional in the local school district within the Special Education program. Brittani will need 24/7 care after transplant for at least several months and expenses will need to be covered during that time. Please consider in supporting Brittani and also sharing this page with your friends and family. Every little bit counts and is greatly appreciated.
Organizer and beneficiary
Briana Johnson
Organizer
Rockford, IL
Briana Johnson
Beneficiary