Main fundraiser photo

Brycen 2024

Tax deductible
Our Baby Boy Brycen August 1, 2019 - August 2, 2019

NICU August 2019

NICU August 2019

Brycen Bash October 2019 [when Brycen should have been born]

Brycen Bash October 2020

Brycen Bash October 2021

Brycen Bash October 2021

Brycen Bash October 2022

CMV Moms at CMV Public Health and Policy Conference October 2023


It is shocking and infuriating that we had never heard of CMV until standing in the NICU on Aug 2, 2019, hours before our son Brycen John passed away. We have also since received incorrect information on CMV from many sources. Thankfully, the National CMV Foundation has provided us constant support and knowledge.

We truly cannot imagine where we'd be without this organization and are therefore incredibly passionate in raising #cmvirus awareness and in raising donations for the NCMVF. CMV is the #1 cause of birth defects and developmental disabilities in the US. A baby must be tested within 21 days of birth to confirm CMV is congenital so there are many children that go undiagnosed as universal screening is not required in the US. In January 2023, Minnesota was the first state to implement universal CMV screening. In October 2023, New York was the second state to roll out universal CMV screening as a one year pilot. Please continue to ask the medical community as many questions about CMV as possible. This will put the pressure on to address this very important topic with families.

We ask that you consider making a donation to NCMVF in memory of our beautiful baby boy Brycen, whom we miss every single day. Donations to the National CMV Foundation will aid in assisting with their mission to:

1. Empower community networks to facilitate CMV conversations to help more people know about CMV before it's too late

2. Influence CMV research priorities regarding CMV prevention, treatment, and intervention

3. Pass CMV legislation

4. Advocate for a CMV vaccine

For more information please visit www.nationalcmv.org.
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Donations 

  • Tetsuya Ichikawa
    • $50
    • 24 d
  • Laurie Bock
    • $50
    • 2 mos
  • Caitlin Turner
    • $150
    • 1 yr
  • Ella Chels Hads
    • $500 (Offline)
    • 1 yr
  • Laurie Bock
    • $50
    • 1 yr
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Organizer

Emilie McDonald
Organizer
Pittsford, NY
National CMV Foundation
Beneficiary

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