Bryson Jones Fund
Donation protected
My name is Monica Moss and I want to tell you about my Godson, Bryson.
Bryson is an amazing 5 year old boy (the youngest of 4 children) with a medical history that led to a cardiomyopathy diagnosis. Bryson was put on the heart transplant list in October of 2017. At the time, his heart function was so poor that he was put on ECMO and eventually went through surgery to attach him to a Berlin Heart.
The Berlin Heart is a type of "Ventricular Assist Device" or VAD that is used to take over the function of a child's own heart. The device pumps blood around the body in order to keep the brain and other organs healthy. Bryson was attached to a large air driven pump by 4 tubes that were connected directly into his heart. Bryson was tethered to this machine for 24 hours a day. For a 5 year old child the physical limitations were extremely challenging but Bryson and his family were thankful for the time it provided while they waited on the transplant list.
Bryson went to MUSC in October of 2017 and still remains in the Pedicatric Cardiac Intensive Care Unit. As the months passed Bryson's days were spent watching movies, reading books, visiting the atrium (air hockey was a favorite) and bringing joy to all of the staff, patients, families and strangers alike. With a sweet soft voice, kind eyes and old soul, Bryson has brought smiles and love to those lucky enough to care for him.



He set up lemonade stands outside of his room as spring approached, had movie nights inside of his room and even walked around the PCICU delivering milk and cookies to the doctors and nurses.
His precious personality persisted through the highs and lows of his time in the hospital, but as the seasons passed his family knew he was running out of time. A child cannot remain on a Berlin Heart forever and Bryson was about to hit the 8 month mark as he quickly approached his 6th birthday.
On June 18th, Bryson's mother received the call that would change his life forever. She learned that another family was giving him the greatest and most heart-wrenching gift any parent could give. Bryson was getting a heart just 10 days shy of his 6th birthday.
The night of June 19th, Bryson underwent heart transplant surgery that lasted until 7 the next morning. For the first time in 7 months, Bryson was detached from his Berlin Heart. He and family members will need to remain in Charleston for at least the next 6 weeks to be close to MUSC as he recovers and begins to adjust to life after transplant.
Bryson has been at MUSC since October and a family member has been with him everyday as they waited. They have traveled up an down Highway 17 from N. Myrtle Beach to Charleston for the past 8 months. After his heart surgery, Bryson and a family member must remain in Charleston for several months to remain close to MUSC. We are seeking donations to assist with travel costs and living expenses. They are also searching for a short-term rental in Charleston.
Bryson is an amazing 5 year old boy (the youngest of 4 children) with a medical history that led to a cardiomyopathy diagnosis. Bryson was put on the heart transplant list in October of 2017. At the time, his heart function was so poor that he was put on ECMO and eventually went through surgery to attach him to a Berlin Heart.
The Berlin Heart is a type of "Ventricular Assist Device" or VAD that is used to take over the function of a child's own heart. The device pumps blood around the body in order to keep the brain and other organs healthy. Bryson was attached to a large air driven pump by 4 tubes that were connected directly into his heart. Bryson was tethered to this machine for 24 hours a day. For a 5 year old child the physical limitations were extremely challenging but Bryson and his family were thankful for the time it provided while they waited on the transplant list.
Bryson went to MUSC in October of 2017 and still remains in the Pedicatric Cardiac Intensive Care Unit. As the months passed Bryson's days were spent watching movies, reading books, visiting the atrium (air hockey was a favorite) and bringing joy to all of the staff, patients, families and strangers alike. With a sweet soft voice, kind eyes and old soul, Bryson has brought smiles and love to those lucky enough to care for him.
He set up lemonade stands outside of his room as spring approached, had movie nights inside of his room and even walked around the PCICU delivering milk and cookies to the doctors and nurses.
His precious personality persisted through the highs and lows of his time in the hospital, but as the seasons passed his family knew he was running out of time. A child cannot remain on a Berlin Heart forever and Bryson was about to hit the 8 month mark as he quickly approached his 6th birthday.
On June 18th, Bryson's mother received the call that would change his life forever. She learned that another family was giving him the greatest and most heart-wrenching gift any parent could give. Bryson was getting a heart just 10 days shy of his 6th birthday.
The night of June 19th, Bryson underwent heart transplant surgery that lasted until 7 the next morning. For the first time in 7 months, Bryson was detached from his Berlin Heart. He and family members will need to remain in Charleston for at least the next 6 weeks to be close to MUSC as he recovers and begins to adjust to life after transplant.
Bryson has been at MUSC since October and a family member has been with him everyday as they waited. They have traveled up an down Highway 17 from N. Myrtle Beach to Charleston for the past 8 months. After his heart surgery, Bryson and a family member must remain in Charleston for several months to remain close to MUSC. We are seeking donations to assist with travel costs and living expenses. They are also searching for a short-term rental in Charleston.
Organizer
Monica Moss
Organizer
Charleston, SC