Camila Rae's CDH Journey

Camila Rae was a preemie at 34 weeks and diagnosed with a congenital diaphragmatic hernia (CDH) & clubbed foot. The diaphragm is the muscle that separates the organs in the abdomen from moving into the chest, which inhibits lung growth. We did not know of this diagnosis prenatally. This typically happens in babies on their left side. She had a hole on her right side with her liver protruding into her chest which was squishing her lung and inhibiting growth. 
She was intubated and sedated immediately owed to her not being able to breath on own after being born. She was this way until she had surgery when she was 7 days old!! They sewed the hole in diaphragm close and put her liver back where it belongs. It was so tough to see my first child this way. 
Since her surgery, she has had some bumps in the road but she will be getting to come home soon. Since she doesn't have enough stamina to eat yet, she will be going home on a feeding pump. We will continue practicing this skill in a home setting.
We will be having nursing come into the house, different therapies, and close monitoring. We will also be going to pediatric  orthopedics for casts for her foot.

We have a long road ahead of us, we will appreciate any amount donations to help us through this transition. We will have NICU bill amongst all the specialty doctor bills, different therapies and medical supplies.
Thank you for reading, thanks for the support, thank you for everything. This rollercoaster has been a strengthening experience for my family and I. ♡


Camila Rae es una bebé prematura nacida a las 34 semanas y le diagnosticaron una hernia diafragmática congénita (CDH) y pie zambo. El diafragma es el músculo que separa los órganos del abdomen del movimiento hacia el tórax, lo que inhibe el crecimiento pulmonar. No conocíamos este diagnóstico prenatalmente. Esto generalmente ocurre en bebés en su lado izquierdo. Tenía un agujero en su lado derecho con su hígado sobresaliendo en su pecho que apretaba su pulmón e inhibía el crecimiento.