CCSVI Treatment Is Required
Donation protected
My Story:
I was diagnosed with MS after a decade of having a misdiagnosis of a benign brain tumor on March 4, 1997. the day after my 32nd birthday. I had 10 years of normal, healthy and active living, but I started having major issues in 2004, so I went back to my doctor thinking it was growing and maybe it was time I had brain surgery to remove it. Finally, after many doctor visits about my mounting symptoms, my doctor arranged for me to have a MRI in 2008, which told me the truth.
In 2010, I was one of the first 500 - 1,000 people in the world to have a treatment to open my veins to allow for my blood to drain from my brain to go back to my heart to be re-oxygenated after W5 presented it on November 21, 2009 about Dr. Paolo Zamboni and his discovery. Since then, doctors from many parts of the world (except Canada) have made great strides to perfect the procedure to be better and longer lasting. That treatment gave me a little more than 6 years of a full life that I definitely wouldn't have had without it.
___________________________________________________________
If you prefer, you can contribute to my Paypal account at [email redacted] instead, or e-transfer (to the same e-mail address) because Gofundme takes a % off the top, and Paypal & e-transferring doesn't.
I also have a bitcoin wallet:
1GrrSkUpn3nMGQEtYfPgrs51sK74PoqgJZ
and please send me an e-mail at [email redacted] so I know who to thank. :)
___________________________________________________________
I had the CCSVI (Chronic Cerebrospinal Venous Insufficiency) treatment to correct my vein issues in April of 2010 performed by the wonderful Dr. Gary Sisken (Interventional Radiologist) in Latham, NY. I was awake throughout the entire procedure. This issue is the cause of MS, at least in my case, and it makes perfect sense.
CCSVI causes hypoxia (low oxygen levels in the blood because it can't circulate back to the heart to re-oxygenate) which causes MS because hypoxia kills brain cells.
CCSVI = Hypoxia = MS It's just that simple.
I am a Canadian, so everything was completely out of pocket, and was VERY expensive. I can't afford to do that again, so I want to have my veins fixed in a way that this is my second (and last) time I will ever have to have it done.
They won't treat me anywhere in Canada because I have the unfortunate diagnosis of MS and the Neurologists here think they own the disorder, so they control the people with it (because of the lucrative kickbacks from Big Pharma). Neurologists run the MS Societies and the government listens to them and do what they recommend, so in fact, we are screwed here.
I used to weight train, run, bike and play competitive sports, but now I can barely walk and I get overwhelmed easily; I want to be active again and have fun with my life.
It would be fantastic to be treated in my own backyard at my local hospital (with no hospital stay), but alas, they won't allow it to be done here. It is a very political topic in Canada, with us left suffering because of the sqabbling by the people who think they own our lives. Sadly, I am caught in the cross-fire.
Neurologists use the arguement that it is not proven and is therefore unsafe for us to have this procedure, even though there so many very qualified and skilled Interventional Radiologists ready to perform this procedure here in Canada. Really, when you think of it, how safe do you think having MS is? People are dying every day from it, or are getting more and more disabled and cause further drain and strain on our tax dollars. It boggles my mind that they would rather load us up with toxins from daily injections and pills (Big Pharma again), than to treat us simply, quickly and inexpensively (if we could be treated where we live).
The procedure I had consisted of simple balloon angioplasty and took about an hour to perform including the ballooning of both jugular veins and the insertion of 6 centimetre stent in my azygous vein; and 3 hours sitting up in the recovery room ; my azygous vein was not only narrowed (stenosed), but it was also twisted, so it required the stent to keep it open; Dr. Siskin decided I didn't require stents in my jugular veins because they looked open and stable after being ballooned,
CSVI is real, (and treatable),and mine as well as many others' improvements for over 6 years prove that MS is a symptom of CCSVI and not a disease on its own (at least in my case). We have been made to become our own doctors since this all began, since many doctors refuse to admit that it helps us to regain the quality of life many others enjoy. Dr. Paolo Zamboni (from Italy) was the first to discover and treat this in Ferrara, Italy and found it gave mobility back to those he treated.
Many of us are more knowlegeable about this than our GPs mainly because we have to be. I am the first to have informed mine when I asked him to refer me to have my first doppler ultra sound. I knew exactly what I needed and where to go for it.
Facebook has a tremendous community for those of us who have had the treatment, for those who are waiting to have it, as well as for those (and their families) who are wanting to learn more about it, who want to improve the lives of MS sufferers and/or their loved ones. There is a Facebook page "CCSVI in Multiple Sclerosis", where there is a wealth of information about this, and Joan Beal, the page owner's husband Jeff, was the first person in North America to have this treatment. Go to Facebook and go to the page and see the information about this.
What Changed With Me
This past spring, I started experiencing muscle weakness in both of my arms and legs, which has gotten much worse in the following months. In September,I was up north (French River, Ontario) for my nephew's wedding, when my legs (especially my left one) didn't want to work, so I fell several times at my parents home and during the service and reception because something as simple as the wind knocked me over, or someone walked by me quickly and startled me.
I have fallen when I have to make a step up, no matter how high and have had the knees ripped out of almost all of my pants; it hurts to fall, and I don't want to fall anymore. I have difficulty walking with a cane, and can't coordinate myself with one. My speech is becoming more and more garbled, as well as my eyesight is getting more and more blurry (moreso than just age-related). I also have a difficult time typing and writing, as I did before my first treatment.
Everything else seems to remain to be, at least for the time being.
I am scared for the future that I will lose more of my abilities, and I just want my life back.
Dr. Siskin doesn't provide this treatment anymore, for whatever reason, so did my homework and decided I want to go to Dr. Salvatore Sclafani in Brooklyn, NY (https://www.aacbrooklyn.com/doctor/salvatore-j-d-sclafani-md-fsir/ ), who has been one of the superstars of this procedure since it all began. He is doing IVUS (Intravascular ultrasound) https://en.wikipedia.org/wiki/Intravascular_ultrasound ), where he takes a look at the inside of veins during the procedure to get a better idea about what is going on.
I already have a 6 centemetre stent in my azygous vein (I call it my souvenir), and I will probably need one or more in my jugular veins, left illiac and renal veins, but he won't know for sure until during the procedure to ensure I won't need to have this procedure ever again, and let neuroplasticity (rewiring in my brain) to happen so I can do everything normally again.
This is an excerpt of the e-mail response Dr. Sclafani wrote back to me, "evaluation of the left renal vein and the left iliac vein are important in patients with sensorimotor deficits". Yes, my fellow Canadians, American doctors are accessible by e-mail and they do respond, personally. ;)
In addition to having the procedure, I will need transportation costs to Brooklyn (my roommate has graciously offered to drive me down), accommodations for 2 nights, and whatever is prescribed for me, but I hope to find a natural-based pain killer for the stents I know I will have to have.
I am only 52 years old and want to be mobile for when I have grandchildren. Again, I know exactly what I need done and exactly where I need to go to get it; I have done my homework.
I am not scared about the procedure at all (including getting stents) because a lot of work has been done to understand what is going on, and they have made stents made specifically for veins. I have met Dr. Sclafani at various events after my first procedure. I am scared, however, if I don't have it; my future will be a bleak one, one that I don't want to even contemplate; I watched my biological father die from MS, and I don't want to die the way he did.
I need your help. Even if you can only afford a dollar or two, all combined, a little can grow into enough. You will be helping to save my quality of life. Please donate whatever you can, so I can have this procedure, because I know first hand, that it works and works well.
Thank you!
Diana Gordon
I was diagnosed with MS after a decade of having a misdiagnosis of a benign brain tumor on March 4, 1997. the day after my 32nd birthday. I had 10 years of normal, healthy and active living, but I started having major issues in 2004, so I went back to my doctor thinking it was growing and maybe it was time I had brain surgery to remove it. Finally, after many doctor visits about my mounting symptoms, my doctor arranged for me to have a MRI in 2008, which told me the truth.
In 2010, I was one of the first 500 - 1,000 people in the world to have a treatment to open my veins to allow for my blood to drain from my brain to go back to my heart to be re-oxygenated after W5 presented it on November 21, 2009 about Dr. Paolo Zamboni and his discovery. Since then, doctors from many parts of the world (except Canada) have made great strides to perfect the procedure to be better and longer lasting. That treatment gave me a little more than 6 years of a full life that I definitely wouldn't have had without it.
___________________________________________________________
If you prefer, you can contribute to my Paypal account at [email redacted] instead, or e-transfer (to the same e-mail address) because Gofundme takes a % off the top, and Paypal & e-transferring doesn't.
I also have a bitcoin wallet:
1GrrSkUpn3nMGQEtYfPgrs51sK74PoqgJZ
and please send me an e-mail at [email redacted] so I know who to thank. :)
___________________________________________________________
I had the CCSVI (Chronic Cerebrospinal Venous Insufficiency) treatment to correct my vein issues in April of 2010 performed by the wonderful Dr. Gary Sisken (Interventional Radiologist) in Latham, NY. I was awake throughout the entire procedure. This issue is the cause of MS, at least in my case, and it makes perfect sense.
CCSVI causes hypoxia (low oxygen levels in the blood because it can't circulate back to the heart to re-oxygenate) which causes MS because hypoxia kills brain cells.
CCSVI = Hypoxia = MS It's just that simple.
I am a Canadian, so everything was completely out of pocket, and was VERY expensive. I can't afford to do that again, so I want to have my veins fixed in a way that this is my second (and last) time I will ever have to have it done.
They won't treat me anywhere in Canada because I have the unfortunate diagnosis of MS and the Neurologists here think they own the disorder, so they control the people with it (because of the lucrative kickbacks from Big Pharma). Neurologists run the MS Societies and the government listens to them and do what they recommend, so in fact, we are screwed here.
I used to weight train, run, bike and play competitive sports, but now I can barely walk and I get overwhelmed easily; I want to be active again and have fun with my life.
It would be fantastic to be treated in my own backyard at my local hospital (with no hospital stay), but alas, they won't allow it to be done here. It is a very political topic in Canada, with us left suffering because of the sqabbling by the people who think they own our lives. Sadly, I am caught in the cross-fire.
Neurologists use the arguement that it is not proven and is therefore unsafe for us to have this procedure, even though there so many very qualified and skilled Interventional Radiologists ready to perform this procedure here in Canada. Really, when you think of it, how safe do you think having MS is? People are dying every day from it, or are getting more and more disabled and cause further drain and strain on our tax dollars. It boggles my mind that they would rather load us up with toxins from daily injections and pills (Big Pharma again), than to treat us simply, quickly and inexpensively (if we could be treated where we live).
The procedure I had consisted of simple balloon angioplasty and took about an hour to perform including the ballooning of both jugular veins and the insertion of 6 centimetre stent in my azygous vein; and 3 hours sitting up in the recovery room ; my azygous vein was not only narrowed (stenosed), but it was also twisted, so it required the stent to keep it open; Dr. Siskin decided I didn't require stents in my jugular veins because they looked open and stable after being ballooned,
CSVI is real, (and treatable),and mine as well as many others' improvements for over 6 years prove that MS is a symptom of CCSVI and not a disease on its own (at least in my case). We have been made to become our own doctors since this all began, since many doctors refuse to admit that it helps us to regain the quality of life many others enjoy. Dr. Paolo Zamboni (from Italy) was the first to discover and treat this in Ferrara, Italy and found it gave mobility back to those he treated.
Many of us are more knowlegeable about this than our GPs mainly because we have to be. I am the first to have informed mine when I asked him to refer me to have my first doppler ultra sound. I knew exactly what I needed and where to go for it.
Facebook has a tremendous community for those of us who have had the treatment, for those who are waiting to have it, as well as for those (and their families) who are wanting to learn more about it, who want to improve the lives of MS sufferers and/or their loved ones. There is a Facebook page "CCSVI in Multiple Sclerosis", where there is a wealth of information about this, and Joan Beal, the page owner's husband Jeff, was the first person in North America to have this treatment. Go to Facebook and go to the page and see the information about this.
What Changed With Me
This past spring, I started experiencing muscle weakness in both of my arms and legs, which has gotten much worse in the following months. In September,I was up north (French River, Ontario) for my nephew's wedding, when my legs (especially my left one) didn't want to work, so I fell several times at my parents home and during the service and reception because something as simple as the wind knocked me over, or someone walked by me quickly and startled me.
I have fallen when I have to make a step up, no matter how high and have had the knees ripped out of almost all of my pants; it hurts to fall, and I don't want to fall anymore. I have difficulty walking with a cane, and can't coordinate myself with one. My speech is becoming more and more garbled, as well as my eyesight is getting more and more blurry (moreso than just age-related). I also have a difficult time typing and writing, as I did before my first treatment.
Everything else seems to remain to be, at least for the time being.
I am scared for the future that I will lose more of my abilities, and I just want my life back.
Dr. Siskin doesn't provide this treatment anymore, for whatever reason, so did my homework and decided I want to go to Dr. Salvatore Sclafani in Brooklyn, NY (https://www.aacbrooklyn.com/doctor/salvatore-j-d-sclafani-md-fsir/ ), who has been one of the superstars of this procedure since it all began. He is doing IVUS (Intravascular ultrasound) https://en.wikipedia.org/wiki/Intravascular_ultrasound ), where he takes a look at the inside of veins during the procedure to get a better idea about what is going on.
I already have a 6 centemetre stent in my azygous vein (I call it my souvenir), and I will probably need one or more in my jugular veins, left illiac and renal veins, but he won't know for sure until during the procedure to ensure I won't need to have this procedure ever again, and let neuroplasticity (rewiring in my brain) to happen so I can do everything normally again.
This is an excerpt of the e-mail response Dr. Sclafani wrote back to me, "evaluation of the left renal vein and the left iliac vein are important in patients with sensorimotor deficits". Yes, my fellow Canadians, American doctors are accessible by e-mail and they do respond, personally. ;)
In addition to having the procedure, I will need transportation costs to Brooklyn (my roommate has graciously offered to drive me down), accommodations for 2 nights, and whatever is prescribed for me, but I hope to find a natural-based pain killer for the stents I know I will have to have.
I am only 52 years old and want to be mobile for when I have grandchildren. Again, I know exactly what I need done and exactly where I need to go to get it; I have done my homework.
I am not scared about the procedure at all (including getting stents) because a lot of work has been done to understand what is going on, and they have made stents made specifically for veins. I have met Dr. Sclafani at various events after my first procedure. I am scared, however, if I don't have it; my future will be a bleak one, one that I don't want to even contemplate; I watched my biological father die from MS, and I don't want to die the way he did.
I need your help. Even if you can only afford a dollar or two, all combined, a little can grow into enough. You will be helping to save my quality of life. Please donate whatever you can, so I can have this procedure, because I know first hand, that it works and works well.
Thank you!
Diana Gordon
Organizer
Diana Gordon
Organizer
Barrie, ON