Celebration of Life and Burial for Demaurion Hart
Donation protected
Demaurion was a vibrant, joyful, and always smiling 16 year old that suffered from a rare genetic illness called Angelman Syndrome. Angelman syndrome is a genetic disorder that primarily affects the nervous system. Characteristic features of this condition include developmental delay, intellectual disability, severe speech impairment, problems with movement and balance (ataxia), epilepsy, and a small head size.
At birth this was not initially detected however as he progressed a developmental delay was noticed as he evolved. He was unable to speak and was told that he would be unable to walk however God blessed him where he could walk by the age of 4. His disability did not stop his eagerness to learn and most ultimately the ability to love on others! There wasn't a day that went by where he wasn't laughing and in good spirits. Unfortunately, Saturday June 18th he recently passed away in his sleep unexpectedly. We are asking for assistance with his Celebration of Life and burial via go fund me. Please keep the family in your sincerest thoughts and prayers!
Organizer
MissUnique Ebony
Organizer
Jacksonville, FL