CHLOE TEPLEY

I've started this page for a student I taught in 4th grade, and also her mom who is my co-worker.  They both have taught me so much in the time I've know them!  Chloe (age 12) has a very rare disorder called Angelman Syndrome.  She is a nonverbal, has a developmental delay, and has a very high pain tolerance. 

Last year in January, Chloe was diagnosed with influenza A.  From this diagnosis, her stomach and intestinal system shut down. They were able to get her stomach working and the nutrition in that she needed. Since then, she has had many setbacks because of this. Her doctors that know her best are all over 2 hours away from their home and many trips back and forth have needed to be made since then.  Chloe has now had another setback that truly started before Christmas and hasn’t really gotten better, but instead worse.  She is currently in the Children’s hospital as they try to figure out how to get nutrition in as her body is refusing everything and struggling so hard.  Chloe has a seizure disorder that is well controlled with diet and medications, so figuring out her nutritional needs is critical now more than ever!

This has been a huge setback and tremendous stress on their family! Their other two other children are moved from friends to family as they try to navigate this path right now. The family is divided and driving back and forth, staying away from home days at a time,  and buying meals and gas.  It has been draining for them.  They are on such a tight budget right now, even things that seem so simple have been a major financial burden.  Prayers and positive thoughts are needed as well as they move forward and try to come up with a plan.