Chronic Illness: Your Help is Needed

Hey there! I am looking for some assistance through this tough time in my life.

In 2018/2019 I began to feel flu like symptoms and pushed through it because I figured my body was young, and I was probably just tired and needed to rest at some point. During 2020 I had a terrible seizure while home alone and had to call 911, who thankfully took great care of me.

This instance has lead to several specialist visits where I ultimately found out I had chronic blood cancer (essential Thrombocythemia with a Jak2 mutation). This is not something that can go into remission for and it has different effects on each person - for me I have extreme fatigue, neuropathy, migraines, dizzy and fainting spells and it opened the door for multiple autoimmune diseases including

•cluster headaches and migraines

•Crohn’s disease and ulcerative colitis

•severe uncontrolled asthma

•Sjögren’s syndrome

•Fibromyalgia

•sleep apnea

& I also had to have a tumor removed from my uvula and my gallbladder removed.

These issues cause constant pain and make it incredibly difficult to live daily life, even with medication. On top of all that, because my immune system is severely compromised I have been battling desseminated histoplasmosis since January 2024 and it has caused permanent damage to my lungs.

I have applied for disability in my state but it has been almost 12 months with no decision. I do work part time but with my issues there is only so much that my body can take. Right now I am just trying to do the best I can until disability will hopefully come through for me, and any help would be greatly appreciated.

Thank you so much