Help with Graysons Battle to go home

so, as most of you know, Vicki and I have been expecting an addition to our family, Grayson, Michael Coffey. He was born. On Saturday Dec 30th at 2:05 am. And he is absolutely amazing. Unfortunately his liver is underdeveloped and his lungs aren’t working properly. He’s been hooked up to breathing tube since his birth, we live quite far from the hospital and are trying our best to stay close by in case we’re needed and so we can spend time with him every day but we have already been struggling beyond understanding just to stay afloat and I honestly don’t know how much longer we can afford to stay with him, and that’s a devastating thought for our family. I know, I truly understand how hard times are but any help to keep us with our son would be greatly appreciated!