Urgent Need Colemans Brain Surgery
Donation protected
I hate that I'm writing this. I hate that I feel this way. My heart is nervous and breaking. A Mother should not feel this way ever. But I find myself crying out to God hoping he knows my prayer.
My son Coleman is now just turned 17. Several years ago we discovered he had a brain tumor exactly in the middle of his brain. When I say "we" I mean my son, myself and his doctor. For a while we did not know if it was cancer but soon found out it was a tumor that wasn't cancer, just invasive and alive and in his head. And the decision was, it was way more risky to operate than to not. So "WE" decided to manage the side effects. The debilitating headaches that come along with pressure that builds up when your headspace is taken up by a tumor and a brain. 5 days a week or more. Lay down and stay down headaches. My past 5 years as a Mother doing everything I can to save my son from pain and still manage to give him life. We had this, we had a plan. I stay home, I teach him. I give up everything, and stay with him. 5 years, no dates. Stay single and be there for him, no straying from the plan, focused. get him well. Teach him , teach him to cook, to dance, to laugh, to live... teach him everything... Homeschool him... take him through treatments. Keep him Safe, help him grow. Keep to the plan. Prepare him for life. A good LONG life. 5 years. We've been doing this for 5 years. We had a plan.
This past week we got shocking bad news. We discovered through MRI that Colemans brain (the cerebellum) has herniated, literally squeezed out, of the back of his skull and is laying on the top his spinal cord. You see the tumor is taking up space and pushing his brain, his eyes. His A-team of brain surgeons and neurologists quickly got together and did further testing and even his eyes are changing because of the pressure, his optic nerves. Risking his vision. He will need urgent brain surgery to relieve the pressure on his brain and restore his life, relieve his pain and balance. Save his vision. Save his life, his future. This wasn't in our plan. This isn't what we thought would happen. We will be at the hospital tomorrow and Wednesday for testing before admission and surgery. We are scared. The bills already coming in. Steady coming in like the fearful thoughts and waves of anxiety. St. Judes wont take his case after review because it is not cancer. The insurance we have doesn't cover everything. Coleman and I are a team. We are scared but hopeful. We pray and believe God will see us through but we are asking for your help and prayers now. We need it. We will keep you updated as things will be progressing quickly this week. Please pray for his brain, for the surgeons, for wisdom and peace. I am in urgent need as a Mother alone and sadly I too have been sick, but I just think it is stress and my heart breaking. I am not working while all of this happens. I am praying for help and a miracle now...a Christmas miracle....because I cant lose my boy.
My son Coleman is now just turned 17. Several years ago we discovered he had a brain tumor exactly in the middle of his brain. When I say "we" I mean my son, myself and his doctor. For a while we did not know if it was cancer but soon found out it was a tumor that wasn't cancer, just invasive and alive and in his head. And the decision was, it was way more risky to operate than to not. So "WE" decided to manage the side effects. The debilitating headaches that come along with pressure that builds up when your headspace is taken up by a tumor and a brain. 5 days a week or more. Lay down and stay down headaches. My past 5 years as a Mother doing everything I can to save my son from pain and still manage to give him life. We had this, we had a plan. I stay home, I teach him. I give up everything, and stay with him. 5 years, no dates. Stay single and be there for him, no straying from the plan, focused. get him well. Teach him , teach him to cook, to dance, to laugh, to live... teach him everything... Homeschool him... take him through treatments. Keep him Safe, help him grow. Keep to the plan. Prepare him for life. A good LONG life. 5 years. We've been doing this for 5 years. We had a plan.
This past week we got shocking bad news. We discovered through MRI that Colemans brain (the cerebellum) has herniated, literally squeezed out, of the back of his skull and is laying on the top his spinal cord. You see the tumor is taking up space and pushing his brain, his eyes. His A-team of brain surgeons and neurologists quickly got together and did further testing and even his eyes are changing because of the pressure, his optic nerves. Risking his vision. He will need urgent brain surgery to relieve the pressure on his brain and restore his life, relieve his pain and balance. Save his vision. Save his life, his future. This wasn't in our plan. This isn't what we thought would happen. We will be at the hospital tomorrow and Wednesday for testing before admission and surgery. We are scared. The bills already coming in. Steady coming in like the fearful thoughts and waves of anxiety. St. Judes wont take his case after review because it is not cancer. The insurance we have doesn't cover everything. Coleman and I are a team. We are scared but hopeful. We pray and believe God will see us through but we are asking for your help and prayers now. We need it. We will keep you updated as things will be progressing quickly this week. Please pray for his brain, for the surgeons, for wisdom and peace. I am in urgent need as a Mother alone and sadly I too have been sick, but I just think it is stress and my heart breaking. I am not working while all of this happens. I am praying for help and a miracle now...a Christmas miracle....because I cant lose my boy.
Organizer
Meredith Mabie Simms
Organizer
Statesville, NC