Cookies4Mila

Alexis Tygenhof Perella is organizing this fundraiser on behalf of Margaret Spoth.

Donation protected

★ Update, February 2021: This month, Mila lost her battle against Batten. Everyone in Mila's tribe is heartbroken. You can follow the end of Mila's journey through her mom's photos here: https://www.this-is-today.com/photo-journal

This GoFundMe page is still active. Donations go to Mila's Miracle Foundation to continue funding research into personalized genetic treatments. This is part of Mila's legacy. Part of the amazing gift she has left behind.

Cookies4Cures began because of Mila. Cookies4Mila was my first campaign and it is now one of many. Please consider joining my journey as I fight to fund research into rare pediatric diseases. www.cookies4cures.com

With hope, butter, and love,
Dana

★ Update, February 2018: Mila has raised enough money to start her treatment! Yay! I am now raising money to help another friend, Ollie, who has PANS. Come check out our new campaign, Cookies4PANS !

Hi, I’m Dana and I’m 7 years old. I am raising money to help save the life of my friend, Mila.

About two years ago, I had to go to speech therapy, and when I was there, I met a girl named Mila. We became good friends because we both had a stutter. We worked really hard at therapy. After a year, I got better and my stutter went away. But Mila’s didn’t. Mila kept getting worse.

I found out a few months ago that Mila was diagnosed with a rare disease called Batten. It’s a problem with her genes. She was born with it, and if she doesn’t get treatment, she will get super sick and then she will die. I feel heartbroken for Mila and her family, especially her little brother, Azlan. He is almost the same age as my brother, Carson. I imagine how sad Carson would be if I got sick and was going to die.

The good news is that there is a new treatment for Mila that could stop her disease and SAVE HER LIFE! And the research will help save the lives of lots of other kids who are sick like Mila. But it’s experimental so insurance won’t cover it and it is SUPER expensive.

I really want to save my friend. I asked my mom how I could help and she said we could bake cookies. So, we baked a bunch of cookies, loaded them and my brother in a red wagon, and sold the cookies all over our neighborhood. We started in the summer, and since then, we have sold so many cookies! We even started shipping cookies across the country because so many people want to help Mila.

My first goal was $1000 and we hit that right before Halloween. I was so excited, but Mila still needs more help to afford her treatment. I’m starting this GoFundMe so that I can reach more people. I want to inspire kids all over the world to join me by raising money (lemonade stands, bake sales, GoFundMes) to help save Mila's life with me!!

(That's Mila ^)

Can you help me save my friend? Any size donation will help. Thank you and please help us spread the word.