Cookies4Sophie: funding research & hope for Sophie

Hi, I’m Dana. I’m 14 years old, and I’m the founder of Cookies4Cures, a nonprofit that raises money for research into rare pediatric diseases. I want to introduce you to my friend, Sophie. Sophie is six years old and lives in Boulder. 

^This is my friend, Sophie

Sophie has a really rare and really scary disease. It’s called MCTO. It stands for Multicentric Carpotarsal Osteolysis, which means it’s a problem with her bones. In a healthy person, your bones are alive and the cells need to replace themselves to keep your bones strong. Because of a genetic mutation, Sophie’s bones can’t do this. And there just isn’t a not-scary way to describe this — Sophie’s bones are going to dissolve, and it’s already started. 

^These are Sophie’s hands. The bones in her hands have started to dissolve because of MCTO.

So Sophie’s mom and dad are funding research to find a cure and we are going to help! We need to raise a lot of money really fast because the faster we find a cure, the better Sophie’s life will be. Right now, she can still do lots of things like walk and play. I don’t want her to lose that. 

Even though this disease is super rare (only 30 people have it!), other diseases share a similar pathway. The research that helps Sophie will hopefully help a lot of other people, too. 

Cookies4Sophie is going to raise $50,000 to help fund research to save Sophie’s bones. Our plan is to bake A LOT of cookies. Cookies4Cures has already baked 22,000 cookies and raised over $350,000 for other rare pediatric diseases, so I know we can do this! 

^ This is me with A LOT of cookies!!!

Do YOU want cookies?

Stay tuned to this page for updates on the next Cookies4Sophie Cookie Pop-up.

The price is always “Give what makes your heart feel good!”

Some more details about the cookies:

* 6 cookies per bag

* Cookies will be a random assortment of deliciousness. You get what you get, and don’t throw a fit. But don’t worry, you’ll love them!

* All cookies are homemade, made by kids in home kitchens. We will all wear masks and be extremely careful. 

* Unfortunately, we can’t accommodate any dietary restrictions or preferences. 

* You’ll need to pick your cookies up at Santo on the designated pick up day during a pick up window. 

^ This is me baking cinnamon rose cookies, one of my favs. I have a lot of favorites!

I hope you will join us in trying to give my friend, Sophie, a miracle. Everything we accomplish is because of our amazing community of bakers, sellers, and cookie lovers. Thank you for being a part of our story!!!

With hope, butter, and love,

Dana, Sophie, and the Cookies4Cures kids

PS. Learn more about Sophie at Sophie’s Neighborhood !

More information about Sophie's Neighborhood: We are a 501c3 dedicated to raising research funding to find a cure, treatment or therapy for a progressively crippling childhood genetic disorder, Multicentric Carpotarsal Osteolysis (MCTO.)

PPS. Here is our main page, Cookies4Cures, and our other campaigns:

Read all about SMA and our friend Ben at Cookies4SMA !

Read all about PANS and our friend Ollie at Cookies4PANS !

Read all about Batten and our friend Mila at Cookies4Mila !