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COVID Vaccine-COVID Injured Teenager

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My name is Scott Deaton and I am fundraising on behalf of Kenna Rose Farley. She has been diagnosed with POTS and EDS after being vaccinated and the insurance companies are denying her the treatment that her doctors have recommended. Her symptoms are so severe that she now faints several times a day and is in a wheelchair because if she stands up she is a fall risk. Please help with any donations you can to help cover her medical treatment. Here is her story.

In May/June 2021, Kenna received the Pfizer COVID vaccines. Prior to this she was a completely healthy teenager. Within 2 months, she began having unusual cardiovascular symptoms that were diagnosed as sinus node tachycardia. In January 2022, she got the Pfizer booster vaccine and within a few months her POTS symptoms started manifesting, although we didn’t know what was causing them. Within a month of receiving the booster she got COVID for the first time. In the summer of 2022, her symptoms became so severe that Kenna had to quit her beloved color guard because she was too fatigued to go to school. Ascending stairs caused her heart rate to jump to 200. Kenna has tried and continues to try the recommended cardiac medications for treatment, but they are not preventing her from fainting. She had to quit in-person school due to mobility, headaches, and nausea due to POTS. She ultimately got COVID 3 times in 2022 after being booster.

In late 2022, she was diagnosed with Ehlers Danlos with hypermobility. She pushed through and did okay for the first month, but the spark vanished at the end of January/beginning of February because Kenna got a cold which threw her into a POTS/EDS flare. She was only able to attend two days of school in February at which point the school recommended hospital homebound instruction. She has since lost her friends and is not able to participate in school activities or church activities such as youth group.

Their insurance company (Kaiser Permanente) has repeatedly refused the treatment that her doctors have recommended whether it is pain psychologists, geneticists to diagnose the type of EDS, various types of physical therapy, and most recently the Rehabilitation Amplified Pain Syndrome (RAPS) Program at Children’s Mercy Hospital in Kansas City which specialized in treating people with POTS and EDS. This program is extremely expensive and we need all the help we can get to generate the funds needed for it. I will personally match dollar for dollar up to $5000 in donations.
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Donations 

  • EDEN Griffin
    • $100
    • 8 mos
  • Bukky Akiyode-Tagbo
    • $100
    • 9 mos
  • Andy Long
    • $200
    • 11 mos
  • Mark Painter
    • $100
    • 1 yr
  • Anonymous
    • $100
    • 1 yr
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Organizer and beneficiary

Scott Deaton
Organizer
Atlanta, GA
Candace Ford
Beneficiary

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