Craniocervical Instability Fund INC Start-up Cost
Donation protected
A company of volunteers is seeking to start a Global NonProfit Organization to give disabled patients of low income who are suffering from debilitating symptoms associated with Craniocervical Instability.
The goal is to provide such patients a better quality of life by making grants to support their medical needs in obtaining relevant imaging, covering reasonable travel expenses and (out of pocket) costs for medical care relative to Craniocervical Instability.
Start-up costs will be associated with Legal Consultations, Startup Forms and fees, Web Hosting (for Awareness, Marketing, Donor & Patient Intake, Volunteer Sign up).
This fund will support financial aspects that are proven to work:
- AO, CBP, SOT Chiropractic
- Physical Therapy (specific to CCI / AAI)
- Regenerative Medicine (Prolotherapy, PRP, Stem Cell)
- Last Resort - CranioCervical Fusion
We thank you in advance for your loving support, and look forward to helping your loved ones in the near future.
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ABOUT CRANIOCERVICAL INSTABILITY
Craniocervical Instability is a chronic condition where there is too much movement in the upper cervical spine. This is mostly caused by ligament weakness, which often occurs in patients with Ehlers Danlos Syndrome and other hereditary connective disorders. They have increased hypermobility in their joints, including the cervical spine. This means ligaments are not able to support the cervical spine and the skull. This condition causes a lot of debilitating neurological symptoms, such as dizziness, tinnitus, severe headaches and paralysis, which cause patients to be disabled, not able to work and bedbound.
Unfortunately there is a lack of knowledge in this field as well as a lack of options for proper diagnostics, which means Craniocervical Instability is underdiagnosed. Also, patients need proper treatment without getting further damage of their ligaments. Patients usually start with conservative treatment. If conservative treatments fail, they can try a combination of conservative treatment and regenerative medicine in order to try heal damaged ligaments. The last resort is occipitocervical fusion.
This is where we get in. Craniocervical Instability Fund helps patients by raising funds in order to get them the right diagnosis and treatment.
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ABOUT CRANIOCERVICAL INSTABILITY
Craniocervical Instability is a chronic condition where there is too much movement in the upper cervical spine. This is mostly caused by ligament weakness, which often occurs in patients with Ehlers Danlos Syndrome and other hereditary connective disorders. They have increased hypermobility in their joints, including the cervical spine. This means ligaments are not able to support the cervical spine and the skull. This condition causes a lot of debilitating neurological symptoms, such as dizziness, tinnitus, severe headaches and paralysis, which cause patients to be disabled, not able to work and bedbound.
Unfortunately there is a lack of knowledge in this field as well as a lack of options for proper diagnostics, which means Craniocervical Instability is underdiagnosed. Also, patients need proper treatment without getting further damage of their ligaments. Patients usually start with conservative treatment. If conservative treatments fail, they can try a combination of conservative treatment and regenerative medicine in order to try heal damaged ligaments. The last resort is occipitocervical fusion.
This is where we get in. Craniocervical Instability Fund helps patients by raising funds in order to get them the right diagnosis and treatment.
Fundraising team (3)
Rob Long
Organizer
Toms River, NJ
Robert Long
Team member
Sharon Niessen
Team member