CRPS- Most Painful Nerve Syndrome Known, Treatment
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Hi my name is Dave Ide. I have CRPS which is the most painful nerve syndrome known to Mankind, period. There is no cure, and the syndrome lasts for life. The syndrome usually starts with major damage to a nerve. Mine started in 2017 when a negligent surgeon severed a nerve in my left foot. The syndrome CRPS (Cronic Regional Pain Syndrome) has another nickname, ""THE SUICIDE DISEASE". This is because many who get CRPS can't bear the terrible daily pain. While there is no permanent cure there is some treatments that can reduce pain a great deal. The drug that has the best pain reduction for a long time and may have a permanent slight to moderate affect in reducing pain is called Neridronate Acid. This IV drug is only available in Genoa Italy. The doctor in Genoa has pioneered it and has treated over 3000 patients in 8 yrs with amazing results! The drug was named by the USA FDA as "A BREAKTHROUGH DRUG FOR CRPS" after a clinical trial in the US. A 2nd clinical trial had mixed results because the dose given was too low and they collected results after 2 weeks when the drug takes two months to act so the US FDA wouldn't approve it! I have had CRPS in my left foot for 7 yrs. There is NO WAY to describe the terrible pain every day and night of my life. I have had several surgeries and dozens of treatments for the pain but none compare to Neridronate! During a recent very extended spinal surgery I wound up with CRPS in my left arm (from several IVs and blood draws and tape torn off) and my right thigh! My body is racked with pain! We are asking for help with the expensive drugs, airfare to Italy, hotel, food and local transport to the hospital in Italy. The expenses add up to $25,000 to $30,000. Please note that we will try to pay as much as we can ourselves, This is just such a huge amount for us now after two spinal surgeries. We know several people who have CRPS who went to Italy and had incredible results with Neridronate that lasted for years. I ask you to Google . " Is CRPS the most painful syndrome?" to see for yourself what CRPS is. We appreciate you reading this SO MUCH and thank you for any help you can give us to go to Italy for the infusions.
Organizer
Dave Ide
Organizer
Ventura, CA